Sage Palliative Medicine & Chronic Care
This is the official free podcast from SAGE Publications for Palliative Medicine & Chronic Care. SAGE is a leading international publisher of journals, books, and electronic media for academic, educational, and professional markets. The show is intended to share content related to the field of palliative medicine and chronic care. SAGE has principal offices in Los Angeles, London, New Delhi, and Singapore.
Episodes
Specialist palliative care improves patient experience, reduces bed days and saves money: An economic modelling study of home- and hospital-based care
This episode features Dr Peter May (Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, UK School of Medicine, Trinity College Dublin, Ireland). What is already known on this topic? Specialist palliative care increases odds of dying outside hospital and improves patient quality of life, but this is a complex intervention and not all who might bene
Reasons for patients in high income countries accessing hospital care while receiving specialist community palliative care: A systematic review and meta-ethnography
This episode features Norah Elvidge (School of Nursing, Faculty of Health, Queensland University of Technology, Kelvin Grove, QLD, Australia. Silverchain, Melbourne, VIC, Australia). What is already known on this topic? Many people with palliative care needs would prefer to be cared for and/or die at home. Many people will be cared for at home by specialist community palliative care serv
Multi-perspective views about healthcare experiences for those with incurable head and neck cancer: A prospective, longitudinal, qualitative study
This episode features Dr Catriona Mayland (University of Sheffield, UK. Sheffield Teaching Hospitals NHS Foundation Trust, UK. Palliative Care Unit, University of Liverpool, UK). What is already known on this topic? The disease trajectory for people with incurable head and neck cancer is unpredictable. This cancer subgroup has high healthcare utilisation even in the last months of life.
Exploring the hidden before the end: A phenomenological analysis of forgiveness at the end of life among spiritual caregivers
This episode features Dr Claudia Rossy Parés (Department of Psychology, Universitat Internacional de Catalunya, Barcelona, Spain). What is already known on this topic? Research has associated forgiveness with physical, emotional and spiritual benefits in people facing the end of life. Health professionals often feel unprepared to talk about forgiveness with their patients. The role that t
Quality indicators for palliative care for older people: An umbrella review
This episode features Amy Hutchinson (Queensland University of Technology (QUT), Centre for Healthcare Transformation, Faculty of Health, Brisbane, Queensland, Australia). What is already known on this topic? Quality indicators for palliative care have been extensively researched in different populations and settings. A comprehensive suite of palliative care quality indicators for older p
Episode 3: Shirley Otis-Green
E2 - Charles von Gunten
E2 - Charles von Gunten
Loading phenobarbital in paediatric home-based terminal care: A case series
This episode features Jo-Anne J. Kelly (Palliative Care South East, Narre Warren, VIC, Australia (Palliative Care South East, Narre Warren, VIC, Australia) and Dr Karen Aisling Griffin (Palliative Care South East, Narre Warren, VIC, Australia, Peninsula Health, Frankston, VIC, Australia) What is already known about this topic? Phenobarbital loading in the adult palliative cohort for refracto
Sexual health at the end of life in patients with advanced cancer and their partners. Results of a Dutch prospective longitudinal study (eQuiPe)
This episode features Isabel S. van der Meer (Department of Research and Development, The Netherlands Comprehensive Cancer Organisation, Utrecht, The Netherlands). What was already known? The diagnosis of advanced cancer and subsequent treatments can have negative implications for sexual health Changes in sexual health of patients with advanced cancer emerge from physical, mental and emotiona
Balancing present-moment acceptance and future concerns: A qualitative study of illness experiences and perceptions of palliative care in progressive neurological diseases
This episode features Lily Man Lee Chan (School of Nursing, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong SAR). What is already known about the topic? Progressive neurologic diseases involve complex, fluctuating symptoms and function decline. Palliative care aims to improve quality of life and symptom control. Access to palliative services is often limited to adva
Loading phenobarbital in paediatric home-based terminal care: A case series
This episode features Jo-Anne J. Kelly (Palliative Care South East, Narre Warren, VIC, Australia (Palliative Care South East, Narre Warren, VIC, Australia) and Dr Karen Aisling Griffin (Palliative Care South East, Narre Warren, VIC, Australia, Peninsula Health, Frankston, VIC, Australia) What is already known about this topic? Phenobarbital loading in the adult palliative cohort for refracto
Palliative care and assisted dying: Uneasy bedfellows
This episode features Professor Nancy Preston (International Observatory on End of Life Care, Lancaster University, Lancaster, UK) and Professor James Downar (Division of Palliative Care, Department of Medicine, University of Ottawa, Ottawa, ON, Canada) This podcast summarises a editorial which describes the critical intersection of palliative care and assisted dying where legalization has occur
A qualitative study exploring the perceptions and understandings of advance care planning by people with treatable but not curable cancer
This episode features Professor Sheila Payne (International Observatory on End of Life Care, Health Innovation One, Lancaster University, Lancaster, UK). What is already known about the topic? Advance care planning is considered good practice in palliative and end of life care and is promoted in health policy. There is no standardised approach to advance care planning in practice. There is r
Enhancing the wellbeing of refugees living with advanced life-limiting illness in high-income resettlement countries: A systematic review
This episode features Dr Heidi Merrington (School of Public Health, The University of Technology Sydney, Sydney, NSW, Australia) and Professor Angela Dawson (School of Public Health, The University of Technology Sydney, Sydney, NSW, Australia). What is already known about the topic? In high-income countries, refugees experience barriers to accessing health care that may delay palliative care s
Asian family members' participation in advance care planning: An integrative review
This episode features Jing-Da Pan (Department of Oncology, The Second Affiliated Hospital, Guangzhou Medical University, Guangzhou, Guangdong Province, China School of Nursing, Guangzhou Medical University, Guangzhou, Guangdong Province, China) What is already known about the topic? Family members are crucial in advance care planning for patients with life-limiting illnesses, particularly in A
The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis
This episode features Victoria Ali (Lancaster University, Lancaster, UK. Bradford Teaching Hospitals NHS Foundation Trust, Bradford, UK) What is already known about the topic? Nurses deliver care for patients and those important to them across acts that may intentionally or potentially hasten death, navigating this care within the boundaries of healthcare systems and professional regulation.
Changes in perception of prognosis in the last year of life of patients with advanced cancer and its associated factors: Longitudinal results of the eQuiPe study.
This episode features Moyke Versluis (Research and Development, Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, The Netherlands Graduate school of Social and behavioral sciences, Tilburg University, Tilburg, The Netherlands). What is already known about the topic? Patients who are aware of their limited prognosis are more likely to be actively involved in advance care planning.
Components of home-based palliative and supportive care for adults with heart failure: A scoping review
This episode features Dr Madhurangi Perera (Cancer and Palliative Care Outcomes Centre, School of Nursing and Australia Centre for Healthcare Transformation, Faculty of Health, Queensland University of Technology, Brisbane, QLD, Australia) What is already known about the topic? Providing palliative and supportive care in the home setting for people with heart failure is advantageous because c
Multiple points of system failure underpin continuous subcutaneous infusion safety incidents in palliative care: A mixed methods analysis
This episode features Amy Brown (Marie Curie Research Centre, Division of Population Medicine, School of Medicine, Cardiff University, Cardiff, UK. Swansea University Medical School, Swansea University, Swansea, UK) What is already known about the topic? The third World Health Organization Global Patient Safety Challenge 'Medication without harm', emphasises the need for improved infrastructur
Definition and recommendations of advance care planning: A Delphi study in five Asian sectors
This episode features Dr Masanori Mori (Division of Palliative and Supportive Care, Seirei Mikatahara General Hospital, Hamamatsu, Japan) What is already known about the topic? As in Western countries' health-care systems, advance care planning is being increasingly implemented in Asian ones, but consensus on its definition and recommendations based on Asian culture are lacking. In high-co
The double awareness of the wish to hasten death and the will to live: A secondary analysis of outlier patients from a mixed-methods study
This episode features Professor Raymond Voltz (Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany; Center for Integrated Oncology Aachen Bonn Cologne Duesseldorf (CIO ABCD), Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany; Center for Health Services Research, Faculty of Medicine and University
Development of the TIFFIN recommendations for co-producing palliative and end-of-life care research with individuals with lived experience of homelessness: A qualitative study
This episode features Jodie Crooks (Marie Curie, London, UK) and Dr Briony Hudson (Marie Curie, London, UK; Marie Curie Palliative Care Research Department, University College London, London, UK). What is already known about the topic? Research into palliative care for people experiencing homelessness is complex and requires input from people with lived experience. There is a dearth of eviden
Electronic symptom monitoring for home-based palliative care: A systematic review
This episode features Suning Mao (State Key Laboratory of Oral Diseases & National Center for Stomatology & National Clinical Research Center for Oral Diseases, West China Hospital of Stomatology, Sichuan University, Chengdu, China) What is already known about the topic? Home-based palliative care has grown in popularity, but challenges in coordinating care and communication between hospital a
Primary palliative care: Onwards and upwards!
This episode features Professor Scott Murray (Primary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK). We are delighted with this special edition, and that Palliative Medicine has turned its focus on this important topic. Primary Palliative Care, delivering palliative care by trained primary care professionals can help meet the outstanding challenge o
Primary palliative care: Onwards and upwards!
This episode features Professor Scott Murray (Primary Palliative Care Research Group, Usher Institute, The University of Edinburgh, Edinburgh, UK). We are delighted with this special edition, and that Palliative Medicine has turned its focus on this important topic. Primary Palliative Care, delivering palliative care by trained primary care professionals can help meet the outstanding challenge o
Primary Palliative Care - onwards and upwards!
Primary Palliative Care - onwards and upwards!
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study
This episode features Richard Keagan-Bull (Faculty of Health, Science, Social Care and Education, School of Nursing, Allied and Public Health, Kingston University London, London, UK). What is already known about the topic? Deaths of people with intellectual disabilities are often unanticipated, unplanned for and poorly managed. Service providers in residential settings are at the forefront of
Subcutaneous sodium valproate in palliative care: A systematic review
This episode features Sheryn Tan (University of Adelaide, Adelaide, SA, Australia) and Dr Stephen Bacchi (Flinders University, Bedford Park, SA, Australia; Lyell McEwin Hospital, Elizabeth Vale, SA, Australia) What is already known about the topic? In palliative care patients for whom there is a need for non-oral antiseizure medications, and a preference to avoid intravenous access, options ar
How palliative care professionals develop coping competence through their career: A grounded theory
This episode features Dr Maria Arantzamendit, (Universidad de Navarra, Institute for Culture and Society-ATLANTES Global Observatory of Palliative Care, Pamplona, Navarra, Spain. IdISNA-Instituto de Investigación Sanitaria de Navarra. Medicina PaliativaK). What is already known about the topic? Palliative care professionals use coping strategies to deal with the emotional challenges of their w
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key
This episode features Hannah Scott, (King's College London, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, London, UK) What is already known about the topic? Person-centred outcome measures have been shown to improve the quality of care and patient outcomes in adult palliative care when successfully implemented into routine care. Several factor
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key
This episode features Hannah Scott, (King's College London, Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, London, UK) What is already known about the topic? Person-centred outcome measures have been shown to improve the quality of care and patient outcomes in adult palliative care when successfully implemented into routine care. Several factor
Long-term bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study
This episode features Dr Fiona Kenney and Koby Anderson, (Ottawa Hospital Research Institute, Ottawa, ON, Canada Bruyère Research Institute, Ottawa, ON, Canada) What is already known about the topic? Previous research demonstrates a high prevalence of severe grief symptoms up to a year post-death of a loved one among those who experienced bereavement during the COVID-19 pandemic. No previous st
Social acceptability of psilocybin-assisted therapy for existential distress at the end of life: A population-based survey
This episode features Sue-Ling Chang, (CHU de Québec-Université Laval Research Center, Oncology Division, Québec City, QC, Canada) What is already known about the topic? There is a growing interest in psilocybin-assisted therapy worldwide, particularly to treat existential distress at the end of life. What this paper adds? In this study, we show that the social acceptability of psilocybin-a
Feasibility and effectiveness of a two-tiered intervention involving training and a new consultation model for patients with palliative care needs in primary care: A before-after study
This episode features Dr Carlos Seiça Cardoso (Faculty of Medicine, University of Coimbra, Coimbra, Portugal CINTESIS@RISE, MEDCIDS, Faculty of Medicine of the University of Porto, Porto, Portugal) What is already known about the topic? The burden of chronic, progressive, incurable and life-threatening illness is increasing, highlighting the need to integrate palliative care into patients' ca
Reduction in potentially inappropriate end-of-life hospital care for cancer patients during the COVID-19 pandemic: A retrospective population-based study
This episode features Ellis Slotman (Netherlands Comprehensive Cancer Organisation (IKNL), Utrecht, the Netherlands) What is already known about the topic? Potentially inappropriate end-of-life care in patients with cancer is still common. The COVID-19 pandemic has been shown to affect cancer diagnosis and treatment, but evidence on how the pandemic has affected end-of-life care is limited. W
Family carer experiences of hospice care at home: findings from a mixed methods realist evaluation
This episode features Dr Vanessa Abrahamson, (Centre for Health Services Studies, University of Kent, Kent, UK). What is already known about the topic? Increasingly, people at end-of-life want to die at home but this relies heavily on family carers to support the patient. Many carers struggle with the practical and emotional burden of caring for a loved one at home. Services providing hospic
"Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta-ethnography"
This episode features Dr Nivedita Ashok, (University College London, London, UK). What is already known about the topic? Individuals with intellectual disability or serious mental illness have high rates of mortality due to physical comorbidities. These populations have specific needs that should be met to provide optimum palliative care and maintain optimum mental healthcare at the end-of-li
What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies
This episode features Caitlin Spooner (Marie Curie Palliative Care Research Department, University College London, London, UK). What is already known about the topic? - Currently, there is no gold standard for evaluating how different methods of prognosticating in advanced cancer impact on patient care. - Prognostic models are principally evaluated by their statistical performance, determining th
Telehealth requires improved evidence to achieve its full potential in palliative care
This episode features Dr Amara Nwosu (Lancaster Medical School, Lancaster University, Lancaster, UK; Liverpool University Hospitals NHS Foundation Trust, Liverpool, UK; and Marie Curie Hospice Liverpool, Liverpool, UK). The podcast is an overview of a published editorial on telehealth in palliative care. Dr Nwosu highlights the unrealised potential of palliative care telehealth, and discusses the
Hospital-service use in the last year of life by patients aged ⩾60 years who died of heart failure or cardiomyopathy: A retrospective linked data study
Title "Hospital-service use in the last year of life by patients aged ⩾60 years who died of heart failure or cardiomyopathy: A retrospective linked data study" Description This episode features Dr Gursharan K Singh (Centre for Healthcare Transformation, Faculty of Health, Queensland University of Technology (QUT), Brisbane, QLD, Australia). What is already known about the topic? - Evidence based g
Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study
This episode features Hannah May Scott (Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK). What is already known about the topic? - Although spiritual concerns are recognised as a core component of palliative care for children, there is a paucity of primary data. - Self-report data from children is rare, and exist
Palliative care for people who use drugs during communicable disease epidemics and pandemics: A scoping review on access, policies, and programs and guidelines
This episode features Dr Jenny Lau (Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada; Department of Family and Community Medicine, University of Toronto, Toronto, ON, Canada; Division of Palliative Care, University Health Network, Toronto, ON, Canada) and Dr. Daniel Buchman (Everyday Ethics Lab, Centre for Addiction and Mental Health, T
Applying the community readiness model to identify and address inequity in end-of-life care in South Asian communities
This episode features Dr Rachael Moss (Bradford Institute for Health Research, Bradford Teaching Hospitals Foundation Trust, Bradford, UK). What is already known about the topic: - The degree to which individuals access and use palliative and end-of-life care services varies across communities and countries. What this paper adds: - This study found that the South Asian community (in Bradford, UK
Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey
This episode features Isabel Vandenbogaerde (End-of-life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Ghent, Belgium). What is already known about the topic: Involvement of family carers in advance care planning conversations is crucial for end-of-life decision-making. Family carers are willing to engage in advance care planning conversations, but experience barriers
End-of-life communication strategies for healthcare professionals: A scoping review
This episode features Dr Joyce Chung and Weilin Chen (School of Nursing, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong SAR, China). What is already known about the topic: End-of-life communication can improve patients' quality of life, ease the bereavement experience, raise care satisfaction and reduce the utilisation of aggressive and expensive medical care. Healthcare prof
Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review
This episode features Suzanne Smith (Master of Palliative Care student, Flinders University, Australia; Victorian Paediatric Rehabilitation Service, Australia), Dr Megan Doherty (University of Ottawa, ON, Canada; Children's Hospital of Eastern Ontario, Ottawa, ON, Canada) and Dr Mostofa Kamal Chowdhury (BangabandhuSheikh Mujib Medical University, Dhaka, Bangladesh). What is already known about t
Addressing inequity in palliative care provision for older people living with multimorbidity. Perspectives of community-dwelling older people on their palliative care needs: A scoping review
This episode features Dr Richard Green (University of Surrey, Guildford, UK). Multimorbidity is increasing substantially worldwide, is associated with greater use of healthcare services, lower quality and quantity of life, and rises with age. Older people with multimorbidity are expected to become the main recipients of palliative care in the coming decades; however, there is limited evidence of
Non-steroidal anti-inflammatory drugs (NSAIDs) in cancer pain: A database analysis to determine recruitment feasibility for a clinical trial
This episode features Dr Andrew Page (Academic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK). Cancer pain is common, extremely debilitating, and undertreated worldwide. We do not know if non-steroidal anti-inflammatory drugs (aka NSAIDs or "anti-inflammatories") are effective in managing cancer pain of any type. To further scientific understanding, UK
Bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study
This episode features Dr James Downar (University of Ottawa, Canada). Early studies in the COVID-19 pandemic have suggested a high prevalence of severe grief symptoms, although most have used convenience or survey sampling methods which may bias the results, and most have assessed symptoms before pathological grief can be diagnosed (
Health care professionals' perceptions of factors influencing the process of identifying patients for serious illness conversations: A qualitative study
This episode features Dr Sofia Morberg Jämterud (Linköping University, Linköping, Sweden) and Anna Sandgren (Linnaeus University, Växjö, Sweden). Serious illness conversations promote patients' possibility of receiving care that is in accordance with their wishes and priorities. Identifying patients for serious illness conversations remains difficult even when palliative care needs are identified.
Turkish imams and their role in decision-making in palliative care: A Directed Content and Narrative analysis
This episode features George Muishout (Department of History, European Studies and Religious Studies, Amsterdam School for Historical Studies, University of Amsterdam, Amsterdam, The Netherlands). To Muslims it is important that medical decisions are in accordance with Islamic values. In life-threatening illness, Muslims ask imams for religious advice on medical decision-making. So far, it is unk
The effects of confronting one's own end of life on older individuals and those with a life-threatening disease: A systematic literature review
This episode features researchers from the the University of Cologne (Germany) from the Faculty of Human Sciences and Faculty of Medicine, Graduate School GROW – Gerontological Research on Well-being, and also the Faculty of Medicine and University Hospital, Department of Palliative Medicine. The researchers are Helena Kukla, Angélique Herrler, Dr Julia Strupp and Professor Raymomd Voltz. Awarene
Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016
This episode features Professor Scott Murray (Primary Palliative Care Research Group, University of Edinburgh, Scotland, UK). People living at home with advanced progressive illness require well-coordinated services at all times of the day and night. Early identification for generalist palliative care support and care planning in the community can improve outcomes but requires effective informati
Is trained communication about desire to die harmful for patients receiving palliative care? A cohort study
This episode features Professor Raymond Voltz, Kathleen Boström and Dr Kerstin Kremeike (Department of Palliative Medicine, Faculty of Medicine and University Hospital, University of Cologne, Cologne, Germany. Patients in palliative care frequently express a desire to die that rarely leads to a request for medical aid in dying. Fearing to cause harm, health professionals report uncertainty regard
Death doulas as supportive companions in end-of-life care: A scoping review
This episode features Si Qi Yoong (National University of Singapore, Singapore). Death doula is a relatively new role found in the United States, United Kingdom, Canada and Australia. Death doulas provide support to the dying and their families. There is uncertainty about its roles, scope of practice, regulation and position within the healthcare system. This review clarifies the uncertainty of
Podcast 97: Revised Recommendations on Standards and Norms for Palliative Care in Europe from the European Association for Palliative Care: a Delphi study
The EAPC published recommendations on standards and norms in palliative care for Europe in 2009. The Delphi technique is a well recognised way to elicit the views of stakeholders and obtain consensus. There are a diversity of international and national definitions and concepts in palliative care which makes comparison between countries and delivery of health care complex. The majority (122) of st
A feasibility and acceptability pilot for the longitudinal measurement of inspiratory and expiratory pressures in people with advanced pancreatic cancer
This episode features Dr Diana Ferreira (Research Fellow at University of Wollongong, Australia). Breathlessness is frequently experienced in people with advanced cancer especially in the last days or weeks of life. Although cross-sectional studies have been done, longitudinal data on changes in maximum inspiratory pressure reflecting muscle strength are lacking. This pilot study aims to evaluate
Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: a mixed methods, multi-stage design
This episode features Professor Scott Murray (Primary Palliative Care Research Group, University of Edinburgh, Scotland, UK). People living at home with advanced progressive illness require well-coordinated services at all times of the day and night. Early identification for generalist palliative care support and care planning in the community can improve outcomes but requires effective informati
Patient Perspectives on States Worse Than Death: A Qualitative Study with Implications for Patient-Centered Outcomes and Values Elicitation
This episode features Dr Catherine Auriemma (Pulmonary and Critical Care Medicine Hospital of the University of Pennsylvania). Prior surveys and limited qualitative work have identified several health states that patients value as equal to or worse than death. The broad range of health states consider equal to or worse than death and the shared attributes of those states are not known. Potential
Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis
This episode features Madeleine Juhrmann (Northern Clinical School, University of Sydney, Sydney, NSW, Australia. HammondCare Centre for Learning and Research in Palliative Care, Greenwich Hospital, Greenwich, NSW, Australia). Global demand for palliative care is increasing and the reliance on exclusively specialist hospital-based care is becoming unsustainable. Community preferences also favour
Adaptation and continuous learning: integrative review of coping strategies of palliative care professionals
This episode features Prof. María Arantzamendi (Institute for Culture and Society, ATLANTES, Universidad de Navarra, Pamplona, Navarra, Spain). Coping is essential to manage the challenges that palliative care professionals face in their daily clinical work and most well-known explanations focus on emotion or problem-based coping. Many of the studies about coping tend to focus on its effect and
'It feels it's wasting whatever time I've got left': A qualitative study of living with treatable but not curable cancer during the COVID-19 pandemic
This episode features Dr Eloise Radcliffe (University of Southampton, Southampton, UK) and Aysha Khan (The Christie NHS Foundation Trust, Manchester, UK) People living with cancer that is treatable but not curable have complex needs, often managing their health and wellbeing at home, supported by those close to them. People living with cancer that is treatable but not curable often wish to maint
Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature
This episode features Jennifer Baxley Lee (Ulster University, Institute of Nursing and Health Sciences Research, Northern Ireland, UK University of Florida, Center for Arts in Medicine, College of the Arts, Florida, USA). An expanding body of evidence demonstrates the positive impacts of the arts on health and well-being. No synthesis currently exists presenting evidence on arts interventions fac
An online international comparison of palliative care identification in primary care using the Surprise Question
This episode features Dr Nicola White (Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK), Dr Christina Gerlach (University Medical Center Hamburg-Eppendorf, Hamburg, Germany), Dr Bert Leysen (Department of Metabolism, Digestion and Reproduction, Faculty of Medicine, Imperial College London, London, UK) and Prof Yvonne Engels (Anesthesio
Asian patients' perspectives on advance care planning: A mixed-method systematic review and conceptual framework
This episode features Dr Diah Martina (Department of Medical Oncology, Erasmus MC Cancer Institute, University Medical Center Rotterdam, Rotterdam, The Netherlands). Asian healthcare professionals hold that patients' family play a central role in advance care planning and rarely engage patients in it. Despite the wide range of studies on advance care planning in different populations in Asian co
Unwelcome memento mori or best clinical practice? Community end of life anticipatory medication prescribing practice: A mixed methods observational study
This episode features Dr Ben Bowers (Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK). The prescribing of injectable anticipatory medications to provide symptom relief in the last days of life is recommended and widespread practice in a number of counties. There is limited research concerning the frequency, timing and context of prescriptio
Effectiveness of two types of palliative home care in cancer and non-cancer patients: A retrospective population-based study using claims data
This episode features Dr Markus Krause (Institute of General Practice and Family Medicine, Jena University Hospital, Jena, Germany) and Dr Antje Freytag (Institute of General Practice and Family Medicine, Jena University Hospital, Jena, Germany). Palliative homecare is an important component of palliative care, and it has a positive impact on the quality of care at the end-of-life. The effect of
Racism in palliative care
This episode features Jamilla Akhter Hussain (Wolfson Palliative Care Research Centre, Hull York Medical School, Hull, UK), Jonathan Koffman (Cicely Saunders Institute of Palliative Care and Rehabilitation, King's College London, London, UK) and Sabrina Bajwah (Cicely Saunders Institute of Palliative Care and Rehabilitation, King's College London, London, UK). This podcast describes an editorial
The 'work' of managing medications when someone is seriously ill and dying at home: A longitudinal qualitative case study of patient and family perspectives'
This episode features Dr Eleanor Wilson (Nottingham Centre for the Advancement of Research in End of Life Care, School of Health Sciences, University of Nottingham Medical School, Queen's Medical Centre, Nottingham, UK) Managing medications at home can be a complex task involving ordering, collecting, organising, storing and taking medications correctly. Medication work must take place alongside
Professionals', patients' and families' views on the use of opioids for chronic breathlessness: A systematic review using the framework method and pillar process
This episode features Florence Reedy (Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK). Chronic breathlessness is a prevalent symptom amongst patients with advanced medical conditions. In combination with disease-modifying therapies and non-pharmacological interventions, regular low dose opioids may safely reduce moderate to severe chronic breathles
Effectiveness of two types of palliative home care in cancer and non-cancer patients: a retrospective population-based study using claims data
Specialist palliative care staff's varying experiences of talking with people with intellectual disability about their dying and death: A thematic analysis of in-depth interviews
This episode features Baby Foo (School of Psychology, The University of Sydney, Sydney, NSW, Australia) and Dr Michele Wiese (School of Psychology, Western Sydney University, Penrith, NSW, Australia). With advancing age and the experience of life-limiting illness, people with intellectual disability need equitable access to effective palliative care. Palliative care staff experience unique challe
Emotional disclosure in palliative care: a scoping review of intervention characteristics and implementation factors
This episode features Daisy McInnerney (Marie Curie Palliative Care Research Department, Division of Psychiatry, UCL, London, UK). Emotional disclosure -based interventions can improve psychological and physical wellbeing in general populations. A range of emotional disclosure-based interventions exist, but evidence of their efficacy in palliative care is mixed; it is not clear in which forms th
Healthcare professionals' views of the use of oral morphine and transmucosal diamorphine in the management of paediatric breakthrough pain and the feasibility of a randomised controlled trial: a focus group study (DIPPER)'
This episode features Dr Liz Jamieson (Research Department of Practice and Policy, University College London School of Pharmacy, London, UK). Oral morphine is the recommended first line treatment for breakthrough pain. Intranasal diamorphine is an effective, rapid onset, well tolerated treatment for use in Accident and Emergency (ED) for trauma patients but lacks study in paediatric palliative c
Pharmacological strategies used to manage symptoms of patients dying of COVID-19: A rapid systematic review
This episode features Laura Health (Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK). COVID-19 has a mortality of between 1% and 2% and is the deadliest pandemic in living memory. The elderly, and those with pre-existing conditions tend to be most vulnerable to severe disease and death. Common symptoms experienced at the end of life include breathlessness an
Dexmedetomidine for hyperactive delirium at the end of life: An open-label single arm pilot study with dose escalation in adult patients admitted to an inpatient palliative care unit
This episode features Benjamin Thomas (Palliative Care Service, Illawarra Shoalhaven Local Health District, Warrawong, NSW, Australia). Terminal delirium is a common symptom at the end of life, causing distress to patients and families. Traditional management for terminal delirium requires sedation, which limits interaction and rousability. This study is the first to report on the use of dexme
Sadness, despair and anger when a patient dies alone from COVID-19: A thematic content analysis of Twitter data from bereaved family members and friends
This episode features Dr Lucy Selman (Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK). Twitter is a rich repository of data reflecting contemporaneous public opinion. The idea of dying alone is contrary to the concept of a 'good death' in many cultures, and not being able to say goodbye is a known risk facto
'Saying goodbye' during the COVID-19 pandemic: A document analysis of online newspapers with implications for end of life care
This episode features Dr Lucy Selman (Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK). During COVID-19, infection control measures have prevented many family members from being with seriously ill or dying loved ones, and impacted on after-death mourning practices and bereavement. Clinicians and funeral offic
Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: a systematic review
This episode features Dr Stephanie Ament (Department of Health Services Research, Care and Public Health Research Institute, Maastricht University, Maastricht, The Netherlands). Identification of palliative care needs in patients with chronic heart failure may be more appropriate for the delivery of optimal care than the application of prognostic models to estimate the risk of dying. Interdiscipl
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