Invisible Not Broken - Chronic Illness Podcast Network
Invisible Not Broken is a podcast network featuring shows hosted by Monica Michelle and Eva Minkoff. It speaks to people living with chronic illness, invisible illness, disability, and chronic pain. The network includes 'Explicitly Sick Podcast' and '[Human]care Podcast', with a motto of 'Be Kind. Be Gentle. Be A Bad Ass.'
Episodes
Addiction, Mental Health, and Community: Author Gerald Lott
content typeInterview primary goalEducational summaryGerald Lott shares his profound insights on addiction, recovery, and community support, emphasizing the importance of connection, understanding, and practical approaches to overcoming substance abuse. keywordsaddiction, recovery, community support, sobriety, mental health, treatment options, sobriety community, mental health advocacy key top
MMERI Scholars: How to Choose College for Disabled and Neurodivergent Students
Social:Navigating college with a disability? 🎓🧩 Stop the guesswork. We're chatting with MMeri Scholars' founder about their MUST-HAVE list of truly accessible universities. Parents, don't miss this! 🏫✨🎧 Listen to Invisible Not Broken: 🔗 in bio.#CollegeBound #Neurodiversity #InvisibleNotBroken #SpecialNeedsParentingsummaryIn this insightful interview, Lisa shares her expertise on college accessibil
Reclaiming Your Life After Medical Trauma with author Jim Jackson
summaryIn this insightful interview, Jim Jackson discusses the profound impact of medical trauma, its recognition, and how healthcare providers and patients can work together to foster healing and resilience. Topics include trauma-informed care, the importance of empathy, and practical interventions to improve mental health outcomes for those affected by medical experiences.Chapters00:00 Introduc
Mahima: Pelvic Floor, Social Media, and Hypermobility Physical Therapist
Why is talking about pelvic floor health still taboo? Let's break the silence around this crucial topic! 💬 Tag someone who needs to hear this. In today's chat with Mahima Tiwari from Empower Heal, we dive into the importance of pelvic floor health for everyone—not just those who have given birth. It’s time to recognize that issues like erectile dysfunction and chronic pain deserve attention too.
Ms. Wheelchair 2026 Nenia Ballard: Tiktok, Wheelchair Fashion, and Adaptive Clothing
💥 Did you know that clothing can look completely different when you're seated? Nenia shares her journey in fashion reviews for wheelchair users, highlighting the need for brands to showcase their clothes on all body types. 💬 What has been your experience with fashion? Share your thoughts below! #FashionReview #DisabilityAwareness #AdaptiveClothing #InclusiveDesignChapters00:00 Introduction to N
Lake: Education Access and Disability
SummaryIn this conversation, the hosts discuss the challenges and experiences related to accessibility and accommodations in education, particularly for students with disabilities. They explore the differences between community colleges and universities, the bureaucratic hurdles in obtaining necessary accommodations, and the impact of societal structures on access to education. The discussion also
Medical Anthropologist Emily Mendenhall On Long Covid, Her New Book, & US Healthcare
🌍 Ever wondered how history influences our view of chronic illness? In our latest episode, we sit down with Emily Mendenhall to discuss her groundbreaking book, "Invisible Illness." She reveals the fascinating connections between past perceptions of hysteria and today's challenges with Long COVID. What do you think – does history repeat itself in the realm of health? Share your thoughts below! #
Judy Kim: Stroke, Author, Art Therapy
🌈 Ever had a moment where your life changed in an instant? 🌀 Judy Kim shares her powerful story of surviving a stroke and how it inspired her to write "Super Survivor." Her journey highlights the importance of sharing our stories and supporting one another. What’s a pivotal moment in your life that shaped who you are today? Drop your thoughts! #LifeChangingMoments #SuperSurvivor #Podcast #Communit
Faye: Patient Advocacy, Disability Magazine, Safe Spaces, and Art Vs Generative AI
SummaryFaye Perez discusses her journey into independent patient advocacy, the importance of community support for those with chronic illnesses, and the launch of her new magazine, the Good News Gazette. The discussion highlights the need for safe spaces in healthcare, the role of art in healing, and the impact of generative AI on creativity. Faye emphasizes the significance of lifting each other
The Blind Redhead: Tech, Access, Gaming, and Social Media Community
Ever had that moment where a piece of tech or a daily habit just… clicked? 🧠✨We’re diving deep into the world of Accidentally Accessible—those "mainstream" tools that have become game-changers for the blind and low-vision community. From the immersive audio of the Apple Vision Pro to the freedom of a Waymo ride, the line between "assistive tech" and "future tech" is blurring. 🚗💨But wellness isn’t
Mariah Tyler Moore: Writing, and Medical Gaslighting
The conversation delves into the challenges of navigating childhood illness, the impact of medical gaslighting during adolescence, and the importance of advocating for oneself in the medical system. It also explores the impact of disability on work and housing, the role of writing as a coping mechanism and productivity, and the value of disabled voices in healthcare. The conversation delves into t
Miranda: Disability Representation From Superman to Kpop Demon Hunter
The conversation covers disability representation in media, the impact of disability on character development, personal stories and relationships, magic and disability representation, tropes and lazy use of magic, and the portrayal of disability in 'The Magicians' and 'Doctor Who'. The speakers discuss the need for more authentic and diverse representation of disability in media, as well as the ch
Chronic Migraine Interview With Kevan From Made In California {Chronic Illness Podcast}
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Tisha Foster: Glamour, Motherhood, Faith, and Chronic Illness
SummaryIn this conversation, Tisha shares her journey of living with chronic illness, emphasizing the importance of gratitude, community support, and the struggles of public perception. She discusses her experiences with autoimmune disorders, the challenges of diagnosis, and how she has reframed her relationship with her illness, focusing on empowerment rather than battle. In this conversation, th
Author of “From the Sidelines to the Finish Line”: Emily Falcon
Monica Michelle is joined by author Emily Falcon.Emily lives with ALCAPA.In this episode, Monica and Emily discuss: Growing up sickPost-surgery supportHaving a public bodySelf-motivation and adventuringTIMESTAMPS00:28 - Being a sick kid & Emily’s book title07:28 - Mortality10:16 - Portrayal of disability in media12:21 - Post-surgery support19:23 - Having a public body23:43 - Self-motivation29:
(HumanCare podcast) How to Live Unapologetically with Chronic Illness: Lauren Freedman
You are subject to change and that’s ok. You’re allowed to make a decision and then change your mind. Its about constant evolution. Be open to that within ourselves and in other people. In order to have good relationships you have to be able to grow with people. - Lauren Freedman➡️ visit https://uninvisiblepod.com/@uninvisiblepodWhat is @uninvisiblepod???An award-winning podcast about invisible co
The Lived Experience of Racism & Advocacy From an Incidental Activist: Tinu Abayomi-Paul
Monica Michelle is joined by disability activist and founder of Everywhere Accessible, Tinu Abayomi-Paul, creator of the popular hashtag #EverywhereAccessible. She is a survivor of Cancer and Chronic Pain, and she is a black woman. *This episode was recorded back in 2020 but is still very topical today. In this episode, Monica and Tinu discuss:Affirmative Action: The Guidelines address what appear
(Explicitly Sick) The Magicians My Favorite SyFy Show Disability, Chronic Illness, and Addiction: With Lisa Sniderman: Spoilers
HOW TO THRIVE SUMMITGet into touch with LisaSuicide Hotline1-800-273-8255Sexual Assault Hotline1-800-656-4673The Magicians(Explicitly Sick) How to Thrive With Chronic Illness and Limited Energy Summit: Lisa Sniderman*Please DO NOT listen if you have not watched through season 5 of The Magicians! We jump right into the biggest gag of the entire show in the first 5 minutes. GO WATCH the show 1-4 is
(Discomfort Zone podcast) Ep 3: Unconditional Love
Chronic pain tore my life apart...and brought my sister and me closer together.Follow me on Facebook, Instagram, and TwitterTRANSCRIPTLisa listened to episode 1 of the show right before sitting down with me for an interview.Jason: So what did you think of the episode?Lisa: I thought it was very well done. I thought it was very emotional and very raw, very real. I really enjoyed hearing it.Jason: I
Being A Teenager With Chronic Illness, NMO, Depression, ME, Homeschool , and Chronic Pain
Join the Dark (Humor) Side Sign Up For Our VERY Infrequent Newsletter Sign up with your email address to receive news and updates. Email Address Sign Up We respec
(Explicitly Sick) What Happens When You Return To Work After Disability: A Teacher's Story
*The Explicitly Sick Podcast*You might remember Julie from her last interview:Nutcracker Syndrome: Kidneys, Bad Ass Teacher, and Staying Sane in Hospital and on Bed RestShe was just recuperating from her surgery for Nutcracker syndrome. You also might remember her concerns about returning to a high school (she is a science teacher) before she was physically ready and if she would be able to naviga
Crohns, Fibromyalgia, Being Sick in Socialized Medical Care vs Being Sick, in For Profit, and mental health and chronic illness
A wonderful interview with Rebecca about life with Crohns, Fibromyalgia, and ME. We cover mental illness and chronic illness, body image and chronic illness, and how to take VERY good care of the spoonie in your life. We also talk about the difference of being sick in a world of socialized medicine and how it is different living in America where our health care is for profit.What is your disorder?
Fibromyalgia, Chronic Illness and School, Target Should Do Better, Thank you ACA, and a Kinder Gentler World for Spoonies
Links From Fibromyalgia Interview :FibromyalgiaFrock Flicks Bored PandaGood WitchSavella Fibromyalgia MedicationSleep Number BedCost of Chronic Illness (Past Episode)ACAWhat is your disorder? *FibromyalgiaAt what age did your disorder become a daily issue? *12Who were you before your illness became debilitating? *I hadn’t really figured out who I was for sure. I was a week away from my 16th birthd
Thoracic Outlet Syndrome, Spoonie Business Owners, Pain Management, & Relationships Chronic Illness Edition
Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! This week we’re ta
Bed Rest and Chronic Illness A Panel: Lupus, Fibromyalgia, and EDS How To Live A Meaningful Life From Bed Rest {A Chronic Illness Podcast}
Faking it: From Disability Placards To Service Dogs: Chronic Illness Podcast
Kyros and I heavily debated doing this episode on Faking It All About Disability Placard and Service Animal Abuse of the System. Though we are not fans of calling people out this has become such an issue in our and others lives. The abuse of the system means life is so much more difficult for those who need these services. Take a listen and
Darwin Has Some Explaining To Do: Endometriosis and Hysterectomy {A Chronic Illness Podcast}
What is your disorder? *EndometriosisAt what age did your disorder become a daily issue? *22Who were you before your illness became debilitating? *I had so much more energyWhat would you do if you were not dealing with your invisible illness? *I think I would have been more engaged in the world around meWhat would you like people to know about your daily life? *Post-hysterectomy it is so much bet
The Ins and Outs of Vasculitis, Rheumatoid Arthritis, Buergers Disease, and Wegners Granulomatosis This Week on our Chronic Illness Podcast
“What are you the most fearful of and what are you the most hopeful for in the future?: Most fearful of leaving this world at a young age as I am an only child and recently lost my father which means my mother would be all alone. My hope is that with my blood and tissue samples that have been taken help progress medical science and a
(HumanCare podcast) How to Adapt to Challenges and Treat the Individual: Jay Berger – Part 1
“Find that marriage between you and your practitioner – they need to hear you and if they're not hearing you, they're not the right person for you” – Jay BergerAs a Physical Therapist with over 20 years expertise in most healthcare areas, Jay Berger has had extensive experience with most chronic diagnoses. She deals primarily with clients with chronic illnesses, and they have taught her a great de
(INB Roundtable) Quarantine Recommendations and Chill Time: Jessie Ace - Part 3
JESSIE ACE - PART 3!In today’s part 3 roundtable discussion, Monica and Eva chat with Jessie Ace, a fellow podcaster, MS warrior, advocate and multi-passionate entrepreneur. On her podcast, Disabled to Enabled, Jessie interviews inspiring people also affected by chronic illness who have turned their diagnosis into something incredibly unexpected. In this episode of Invisible Not Broken, Monica and
Interview With Service Dog Trainer: Tara Moriarty
SummaryIn this conversation, Tara Moriarty discusses her journey into the world of service dogs, the challenges of finding and training them, and the importance of understanding their role in supporting individuals with disabilities. The discussion covers the costs associated with obtaining a service dog, the various training methods, and the misconceptions that the public holds about service dogs
(Explicitly Sick) How to Write About Characters With Disabilities, IBS, and the Importance of New Ways to Talk to Each Other: Allison Alexander
Website/Blog, Twitter, & Instagram Handlewww.aealexander.com, @allisonexanderName *Allison AlexanderDisorder InfoWhat is your disorder? *Irritable Bowel Syndrome (severe), chronic nausea, Cytolytic vaginosisAt what age did your disorder become a daily issue? *8Who were you before your illness became debilitating? *I went through various stages with my chronic illnesses. My IBS started up aroun
(HumanCare podcast) How to Connect with Your Body in Order to Heal: Nicole Krinick - Part 1
“When it’s our time, what we need in life, those lessons come to visit us” - Nicole Krinick, cofounder of WANACheck out WANA!Joinwana.comApple store or android by typing WANAJoin wana on InstagramToday’s episode is Part 1 of my conversation with my colleague and friend, Nicole Krinick. Together we talk about how to Connect with Your Body in Order to Heal. Nicole is the co founder of WANA, a commun
Amyloidosis, Parenting When Chronically Ill, What Not to Ask Sick People, Best idea for Airbnb {chronic illness podcast}
If you have not listened to Dawn's story please do for Flashback Friday. Listen this week, Dawn will be back next week to talk about her experiences being part of a medical study. Invisible Illness does not get much more invisible than Dawn. I can not remember when she first told me she was sick but I promise I was shocked, even with my invisible illness spidey sense. Please listen to the end to
(Explicitly Sick) Navigating Eating Disorders, Perfectionism, Disability, and Robotics: Amy Gaeta - Part 1
Trigger Warning: Sexual abuse, self harm, and eating disorders.If you need help : NEDANational Eating Disorders Association Helpline: 1-800-931-2237Hopeline Network: 1-800-442-4673National Association of Anorexia Nervosa and Associated Disorders: 1-630-577-1330Overeaters Anonymous: 1-505-891-2664Multi-Service Eating Disorders Association (formerly the Massachusetts Eating Disorder Association): 1-
Travel and Disability: Tips, Tricks, for Roadtrips, Planes, and Family Reunions When You Have A Chronic Illness
Join The Dark (Humor) Side Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Before you travelMake sure you have more than enough meds to
Who Knew You Could Live Without Kidneys? {Chronic Illness Podcast}
“Denial? Or I’m just a tough jackass that won’t just die” — Robert Fukushima Bad Ass With No KidneysHemodialysis ACA Fluids in foods Hyperphosphatemia Flavor Boosting Phosphates in food Artificial Kidney More about Artificial KidneysKidney transplant rejection Did You Like What You Listened To? Sign up with your email address to receive news and updates.
Ethical Eating and Motherhood While Managing Chronic Pain: Allison Samon
Monica Michelle is joined by health coach and nutritionist, Allison Samon. Allison lives with unexplained chronic knee, back, and butt pain.Allison's linksInstagramFacebookAllison’s WebsiteIn this episode, Monica and Allison discuss:Pregnancy and MotherhoodEthical Eating + SustainabilitySuburban FarmingUniversal DesignTIMESTAMPS1:02 - Allison’s Story4:13 - Pregnancy + Motherhood15:10- Societal Exp
(INB Roundtable) Discussing Fears of the Future with Progressing Chronic Illness: Monica and Eva
Time for a INB Roundtable! Today I (Eva), "Miss Positivity" and glass-half-full-girl get vulnerable around my progressing illness. And who better to talk about it with than my slap-in-the-face fantastic partner, Monica Michelle <3Coming to terms with where I am and where I'm goingRe-evaluation what being “positive” means in the human contextPARENTING! (gasp)@humancare_podcast@life_of_evesFull s
Sex, Self-Esteem, and Body Awareness
Monica Michelle is joined by Dr. Phillips, award-winning psychotherapist and sex therapist. Dr. Phillips offers a safe, empathetic, and warm environment to help clients achieve their goals. Dr. Phillips has experience in treating LGBTQIA populations, depression, sexual challenges, anxiety disorders, trauma, bipolar disorder, substance use disorders, chronic pain, chronic illness, disabilities, and
(Explicitly Sick) How to Feed Yourself (Spoonie Edition): Occupational Therapist Kimberlea Lemon
Food shopping and meal preparation for spoonies with occupational therapist Kimberlea Lemon and the chronic illness and disability podcast Invisible Not Broken with podcaster Monica Michelle. How to feed yourself, some parenting with chronic illness tips, and an idea for the food box service Hello Fresh. Ehlers Danlos, Fibromyalgia, POTS, ME, and Chronic Fatigue. Hosted on Acast. See acast.com/pri
The Need to Humanize Healthcare: Stephanie Tait (Part 2)
Stephanie Tait is a disabled disability advocate with lyme disease. In the fourteen years it took her to get a diagnosis, she struggled with miscarriages, medical indifference and sexism, and the birth of her two sons. Her book, The View from Rock Bottom, is a tale of her struggles with chronic illness along with messages about faith, pain, suffering, joy, and hope. In this episode, Tait discusses
Work, Disability, and the Spoonie Life {A Chronic Illness Podcast}
Disability, staying home, guilt, and screwing with the feminist agenda.Trying to get over "letting down" the people in your life by staying home for disability.Some behind the scenes of what happened when Monica Michelle had to shut down her Menlo Park photography studio.Trying to justify your day when you stay home every day.Spoon theory and getting to work using public transportation which is no
Traveling With Prescriptions, Adventure, Arrests, and all the Drama
Did you miss Kyros? I did and he came back with a story to tell. This might be one of our most important episodes to share. Kyros got arrested while travelling overseas because the prescribed medication he takes for seizures is considered a "party" drug in the country he had a lengthy stop over in. Please listen and find out how to protect yourself when you travel with your medications. Listen for
Author of “Through the Pain: The Silent Suffering & Triumph of a Personal Trainer”: John K. Frazier
Monica Michelle is joined by author & personal trainer John K. Frazier.John lives with ankylosing spondylitis.In this episode, Monica and John discuss: John’s work as a physical trainer and authorChronic pain comparisonsPersonal triumphTIMESTAMPS00:50 - John’s business & diagnosis07:19 - Chronic pain olympics09:31 - Talking about & hiding a diagnosis15:09 - Personal triumph18:24 - Stay
Empowering Disabled Entrepreneurs: Navigating Chronic Illness, Parenting, and Work-Life Balance: An
SummaryIn this conversation, Sarah Burton shares her journey with chronic illness, discussing her diagnosis, the challenges of parenting while managing health issues, and her transition from a corporate career to entrepreneurship. She emphasizes the importance of community support for individuals with chronic illnesses and the need for greater awareness and understanding in the workplace. This con
M.S., Mental Health, the Fitness Industry: Marnie Bothmer
Monica Michelle is joined by fitness coach, Marnie Bothmer. Marnie lives with multiple sclerosis (MS).Marnie's linksMarie’s WebsiteMarnie’s InstagramIn this episode, Monica and Marnie discuss:Being a Fitness Coach with a Chronic IllnessMarnie’s Diagnosis StoryMedical BillsTrusting your own JudgementADHDGrowing Up ReligiousTIMESTAMPS2:10 - Marnie’s Story 6:15 - Being a Fitness Coach with M.S.8:37-
Fibromyalgia, Anxiety, & College Oh My Part 1 {Invisible Illness}
Thank you so much for joining me in this weeks episode of Invisible Not Broken. Today I am going to be talking to Ms. O about her Fibromyalgia symptoms and some of her Fibromyalgia Treatment as well as her anxiety symptoms all while the wonderful girl is in college.I met Miss O and did a minor bit of pleading for her to come on the podcast. I think I just simply believe everyone should have a chan
VATER Syndrome, Singing Through It, Performance Art, & Disability in the Media
Invisible Not Broken is back with singer songwriter Laura Mustard!We talk art, writing, and music with chronic illness and disabilityCute Dogs Artists Supporting ArtistsDisability in the mediaWhy starving artist is a privilege issueRereading old journals the trauma and the content miningwww.lauramustard.com https://www.youtube.com/user/lauramustardmusic https://open.spotify.com/artist/0yoEf2gicVyb
Citizens United & the Disability Vote: Reclaiming Our Democracy Witch Alexis Claiborne
Unpack the shocking influence of money in politics with us! We dissect how large donations and Super PACs are shaping elections and explore the crucial role of grassroots movements and community engagement in fighting back. Discover strategies for building political support, navigating the path to candidacy, and fostering meaningful conversations across political divides. We delve into the complex
A 26-Year Search for the Right Diagnosis: Micaela Hoo
Monica Michelle is joined by writer and entrepreneur Micaela Hoo.Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease.In this episode, Monica and Micaela discuss: Micaela's diagnosis storyHealthcare insuranceTIMESTAMPS00:24 - The start of Micaela’s diagnosis journey14:42 - Gastroparesis & Micae
A Bear, A Zombie Leg, Food Allergy, Morton's Neuroma, and Living the Spoonie Life
Meet my new co-host Kyros. He was one of the first friends I made when we moved. He and his husbands are the most loving and kind men you could ever hope to call friends. If you ever see Kyros you would know why he would be someone you would think to ask for help moving furniture before you would think to offer him a seat. After talking wit
Suffering the Silence: Kill Stigmas with Storytelling
"The work I'm most proud of is when I'm doing the least talking…and I'm shaping the conversation around [others'] experiences. I'm learning from other people’s strengths and journeys" - Allie Cashel➡️ visit https://www.sufferingthesilence.com/➡️ visit @sufferingthesilence (IG) & @sufferingthesilence (FB)Today’s episode is about stigmas and speaking your truth. Meet Allie Cashel. Allie Cashel i
Jenni Grover (ChronicBabe): How to be Resilient by Being Creative
Today’s episode is about How we can use creativity as a practice to become resilient. Meet Jenni Grover aka the ChronicBabe.Jenni is a celebrated Speaker and Advocate for the chronic illness community and particularly known for having created the chronicbabe community. (http://jennigrover.com)Since founding ChronicBabe.com in 2005, Jenni has taught countless people how to take charge of their live
Jasmine from Embrace the Brace about Ehlers Danlos, Medical School, Competitive Climbing, and Running A Health Blog
Website/Blog, Twitter, & Instagram Handlehttps://embracethebrace.comName *Jasmine RaskasWhat is your disorder? *Ehlers Danlos syndrome with significant neurological and digestive motility complicationsAt what age did your disorder become a daily issue? *12Who were you before your illness became debilitating? *(I was in pain everyday by 12, daily illness by 17, and severely dysfunctional by 20
(HumanCare podcast) How to Heal Fibromyalgia (Or Any Chronic Illness) Through the Power of Mindset
EPISODE LINKSWebsite:www.familyhealthadvocacy.com + https://www.streetsvillechiropractic.com/Instagram: @drs.sinclair —> https://www.instagram.com/drs.sinclair/Pre Order/Order now! Book: ‘Free yourself from the Shackles of Fibromyalgia’Other LinksBrene Brown’s talk with Tim Ferris (SO AMAZING, A MUST LISTEN!)GUEST QUESTIONSWhat is your profession?Chiropractors & Functional Medicine Practit
(Explicitly Sick) Sex, Self Esteem and Body Awareness: Melvin Phillips, Sex Therapist
Sex Positive for Chronic Illness and Disability RecommendationsAASECTPsychology TodayGaps in the Research: Identity and Sexual Communication and Gender Minorities with Physical DisabilitiesPeople with disabilities (PWD) have become the largest minority group in the world, with the number of PWD increasing to approximately 10% of the world’s population.16 million people in the US experience physica
(Explicitly Sick) ME, POTS, Mayo Clinic, and What Persephone Has To Do With It: Sarah Ramey - Part 2
SARAH MARIE RAMEYEmail address *sarahmarieramey@gmail.comWebsite/Blog, Twitter, & Instagram Handlewww.sarahmarieramey.com @sarahmarieramey and @wolflarsenmusic for bothName *Sarah RameyWhat is your disorder? *Hoo boy. What isn't my disorder? We can limit it to ME/CFS, complex regional pain syndrome (CRPS), and postural orthostatic tachycardia syndrome (POTS). Vulvodynia, a neurogenic bowel, ma
(HumanCare podcast) How to Make a Difference in Life for the Better: Clorinda Walley– Part 2
“It’s ok to feel sorry for yourself, its ok to be angry, its ok to cry…you just cant stay there” - Clorinda WalleyClorinda leads the charity, Good Days, which is a national non-profit that primarily provides financial assistance to patients so that they do not have to choose between access to medicine they need and affording everyday living.Clorinda has had more than 20 years of experience in the
EDS,MCA, POTS, Collect Them All: German Socialized Medicine, Medical Marijuana, UBER WE HAVE AN IDEA FOR YOU: Chronic Illness Serial Podcast
“I had always defined myself by my achievements ” — KarinaI have made choice of not doing just one or even two posts of a diagnosis (you might remember my interview). The reason is that each of us have a different experiance with our disorders and I want to
Diabetes The Ultimate in Self Regulation : How To Really Screw Up A College Student's First Year: Chronic Illness is the Baby that Never Grows Up
Diabetes Type 1Neuropathy Diabetes AssociationInsulin PumpInsulinArtificial PancreasThank you so much for joining us this
Relationship Goals, Chronic Illness Edition: Dating, Love, and Literally Writing the Book with Therapist Lisa Gray
Keywordschronic illness, relationships, conflict resolution, empathy, writing process, power imbalance, emotional management, self-help, therapy, communicationSummaryIn this conversation, Lisa Gray, a marriage and family therapist, discusses the complexities of relationships when chronic illness is involved. She shares insights on conflict resolution, the importance of empathy, and how to navigate
Car Shopping with a Wheelchair: Host, Monica Michelle
Note: This is my opinion only. I have Ehlers-Danlos, POTS, MCAD, and Fibromyalgia.If you just want a quick answer: Subaru Outback 2023Hi everyone!Welcome to the new series: Disabled Tech ReviewsThe list of “special” and “luxury” items are not so for those of us in chronic pain. I have a budget that for my personal sit-in gets laughed out of existence.The general list used to be:SafetyMPGEnough spa
(Explicitly Sick) Autoimmune Abbey: BLM, Medical Gaslighting, Religion and Ableism, Keyboard Activist, Chronic migraine, POTS, undifferentiated spondylitis, Mental Health, and IBS
Autoimmune Abbey: #BLM, Medical Gaslighting, Religion and Ableism, Keyboard Activist, Chronic migraine, POTS, undifferentiated spondylitis, Mental Health, and IBSMedical gaslightingWhat happens when your coping mechanism is removedReligion and Ableismbeing the good friend, daughter, daughter in law, wife.The exodus of family and friendsHow medical gaslighting keeps you from medical care and endang
ME, Migraines, Fibromyalgia, Interstitial Cystitis and College
Quick note: Our Skype call was internet cursed but I PROMISE you this is worth it! Sara’s perspective on life will blow you away. Speaking of head over toSara’s Blog: Invisible Me DiaryWhat is your disorder? My main disability is Chronic Fatigue Syndrome/ ME. My dad is also disabled with CFS/ ME and Fibromyalgia. I have other health problems but the main and most urgent disorders which haveaffect
Interview With Stasia Black: CFS/ME, Writing Best Selling Novels, & Running A Publishing Company From the Couch
Website/Blog, Twitter, & Instagram Handlewww.stasiablack.com @stasiawritesmut @stasiablackRecommendationsDragon SoftwareHCG researchPat Ruthfuss Whil Wheaton Mental Health TalkHow to let people downWriting adviceworld building videoName *let's go with my pen name, Stasia BlackWhat is your disorder? *CFS (Chronic Fatigue Syndrome)At what age did your disorder become a daily issue? *19Who were y
Dawn Is Back: Amyloidosis and Drug Trials: AirBnB Idea, Best Chronic Illness Gift Basket, and Family Support
A huge welcome back to my friend Dawn who has amyloidosis and for the last year has been on a drug trial. I asked her to come on to the show to talk about her experiences getting into the trial, what it has been like, what she wishes she had known before, and what will happen to her now that the trial is ending.Important points:Minute 24 How to talk to your doctor about medical trialsMinute 40: Ho
Interview with Lisa Sniderman on her book: A LIGHT IN THE DARKNESS: TRANSCENDING CHRONIC ILLNESS THROUGH THE POWER OF ART DERMATOMYOSITIS
Buy A Light in the Darkness: Transcending Chronic Illness Through the Power of ArtI got an up close look at an amazing woman, Lisa Sniderman, Aoede, with an interview about her upcoming book A Light in the Darkness: Transcending Chronic Illness Through the Power of Art and her chronic illness Dermatomyositis. She is full of fairy sparkle and creativity. Just listening to her made me feel so inspir
Crohn's Disease: College and Invisible Illness, Parenting with Invisible Illness, Joys and Pitfalls of Canadian Healthcare, and The Ultimate Toxic Friend Cleanse
This week on our chronic illness podcast, Invisible Not Broken, I interviewed a woman who has Crohn's Disease.Learn about what a diagnosis like Crohn's can be like in college, dating with a chronic illness, the Canadian healthcare system, parenting with Crohn's Disease, and the upside of chronic illness: the toxic friend cleanse. Did You Like What You Heard? Subscribe! Sign up with
When In Sickness & In Health Gets Real, Denial Isn't Just a River in Egypt, When Are We Getting Self Driving Cars Again?
“Be like water always finding a path” — Colleen WhiteThank you for listening this week, it's a special one for me. Colleen and her family have been dear friends and so supportive during my disability journey. You might be able to tell I adore her. Colleen is caring for her husband who has Stargardt's Disease. Listen for the ways Colleen knows if she hasn't taken time for herself, How deni
Caregiving For An Adult Brother With Mental Illness Who Lives Across the Country
“It was all about me trying to project this image. To whom? No idea, myself I guess. Like anyone was looking.” — KatieDon't forget to share Invisible Not Broken with a friend or a caregiver you know.Until next week Be kind. Be gentle, Be a badass.Thank you for joining us for a very special interview with one of my favorite people. Katie has been a long time friend and my supplier in cute
Gas Lighting: Searching For Chronic Illness Diagnosis in American Healthcare System (Its' funnier than it sounds and just as frustrating)
“I put it down to herd animal weakness. I don’t want to show I could get picked off...I don’t want anyone to know..I’m here as the weakest gazelle going oh shit!” — Jen ToalDid I get lucky! I got to make a new friend. I hope you enjoy listening to Jen. She is an amazing poet and at the end of the interview you can hear two very powerful poems. She is hilarious and strong. She has been dea
Ehlers Danlos, Fibromyalgia, POTS, & MCA Collect Them All {Invisible Illness Podcast}
“What you do is not who you are.” — Monica MIchelleInvisible Illness: Which one do I qualify as sick? Also, a little window into my daily world
Invisible Illness and the Adventure of Getting a Diagnosis {Diagnosis: precious, my precious}
Your Hosts Kyros Starr Monica Michelle Welcome to the first-panel discussion for In
Real Romance: Carbs and Insulin Diabetes and Colitis: Parenting With Chronic Illness: Invisible Illness Serial Podcast
“The reminding part can be absolutely exhausting. When you feel like you’re talking to a brick wall (parenting with chronic illness)” — Vanessa My Silly Billy, Squeaky Cheeky, Floppy Poppy Family By Vanessa Jean Locke Disorder InfoName *Vanessa Jea
Interview With Wellness Podcast Host and SF Therapist Lauren Selfridge: Life and Creativity After Diagnosis
Interview With Wellness Podcast Host and SF Therapist Lauren Selfridge: Life and Creativity After Diagnosis. Lauren Selfridge run This Is Not What I Ordered which she began after her diagnosis with MS.I was a professional photographer until my diagnosis and unending flair of Ehlers Danlos, PTS, Fibromyalgia, and MCA.After my diagnosis I shuttered my business and began to write and illustrate child
(Explicitly Sick) Author of The DISCOMFORT ZONE On IBS, Fibromyalgia, POTS, Meditation and Starting a Chronic Illness Podcast: Jason Herterich
Website/Blog, Twitter, & Instagram Handle DZonePodcast, DZonePodcastName *Jason HerterichDisorder InfoWhat is your disorder? *Fibromyalgia, postural orthostatic tachycardia syndrome (POTS), and irritable bowel syndrome (IBS)At what age did your disorder become a daily issue? *22Who were you before your illness became debilitating? *An outgoing, energetic, adventurous, driven fourth-year engine
Interview: Author Kathryn Trueblood About Her Book: Take Daily As Needed, Crohns & Graves Disease, & Parenting With A Chronic Illness
Trigger Warning: In our discussion we discuss: PTSD, Depression and suicideSuicide hotlinesInternational Hotlines1-800-273-8255 National suicide prevention hotline with messagingResourcesThe Red Badge ProjectWebsite/Blog, Twitter, & Instagram Handlehttps://kathryntrueblood.com/Name *Kathryn TruebloodDisorder InfoWhat is your disorder? *Crohns Disease and Graves DiseaseAt what age did your diso
Cost of Chronic Illness A Chronic Illness Podcast
Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Panel Discussion: T
CSF Leak and Ehlers Danlos Pain Management Physicians Assistant Helps A Zebra Out With Chronic Pain Management Questions and Life on Disability With A Chronic Illness
Life can be full of kismet. I just started doing live recording on ZubiaLive about chronic illness and trying to live a life and the site wanted to connect with LinkdIn. I have not been active on LinkdIn since I was a photographer. So I did my best to create a decent profile for Invisible Not Broken Podcast. In less than an hour I had gotten a lovely email from a Pain Management Doctors PA. who al
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