Lupus: The Expert Series
The Expert Series is an educational podcast series featuring empowering presentations from leading lupus experts with a focus on helping you live well with lupus. Presented by the Lupus Foundation of America, we touch on the daily issues that affect those with lupus: flares, health, medical care, exercise, managing doctor's appointments, diagnosis, and much more.
Episodes
The Expert Series S9E3: Steroids - The Essential Lupus Medicine We Love to Hate
In this episode of the Lupus Foundation of America's The Expert Series podcast, we focus on how steroids are an essential and often life-saving treatment for people with lupus, even though the new SLE guidelines recommend using them as little as possible. Our guest speaker, Dr. Megan Lockwood, walks us through why steroids play such a critical role in lupus care, the potential risks and downsi
The Expert Series S9E2: Taking Care of Your Mental Health - Advice for Making Therapy Work for You
In this episode of the Lupus Foundation of America's The Expert Series podcast, Dr. Nicoleta Skoufalos discusses lessons from her new book, Understanding Autoimmune Disease: A Therapist's Guide to Invisible Illness. This conversation focuses on the emotional and psychological impact of living with autoimmune diseases like lupus. Topics include loss of identity, trauma, finding the right mental hea
The Expert Series S9 E1: Your Lupus Treatment Roadmap - Understanding the New Guidelines and What They Mean for You
In this episode of the Lupus Foundation of America's The Expert Series podcast, Dr. Cindy Aranow discusses the newly released American College of Rheumatology treatment guidelines for systemic lupus erythematosus (SLE). She explains the importance of these guidelines in providing evidence-based recommendations for individualized patient care, the process of developing and updating the guidelin
The Expert Series S8E5: Lupus and Recommended Immunizations
In this episode of the Lupus Foundation of America's The Expert Series podcast, Dr. Amit Saxena dives into why vaccines are such a powerful tool for people living with lupus. Since lupus and some of its treatments can weaken the immune system, getting the right vaccines can make a big difference in staying healthy and preventing serious infections. Dr. Saxena also breaks down which vaccines ar
La Serie de Expertos: Lupus y Manejo del Dolor
En este episodio de La Serie de Expertos, el pódcast de la Fundación de Lupus de América, la Dra. Olga Kromo analiza las complejidades del lupus y su impacto en el manejo del dolor. Aborda los distintos tipos de dolor, las opciones de tratamiento y la carga emocional que conlleva el dolor crónico. Destaca la importancia de comprender el origen del dolor, mantener una comunicación clara con los pro
The Expert Series S8E4: Lupus and Pain Management
In this episode of the Lupus Foundation of America's The Expert Series podcast, Dr. Olga Kromo discusses the complexities of lupus and its impact on pain management. She covers types of pain, treatment options, and the emotional toll of chronic pain. She emphasizes understanding the source of pain, clear communication with providers, and comprehensive care. She also highlights the link between
The Expert Series S8E3: Lupus and Men
In this episode of the Lupus Foundation of America's The Expert Series podcast, we focus on the unique challenges faced by men with lupus, a group that often experiences delayed diagnosis and is impacted by widespread misconceptions. Dr. Lisa Sammaritano shares how lupus symptoms can differ between men and women, and how the disease can affect mental health, identity, and quality of life. We a
The Expert Series S8E2: Lupus and Menopause
In this episode of the Lupus Foundation of America's The Expert Series podcast, we explore the intersection of menopause and lupus, highlighting the unique challenges faced by women with lupus during this significant life transition. Dr. Mehret Birru Talabi explains the stages of menopause, its effects on lupus symptoms, and the importance of individualized care. We also cover hormone replacem
The Expert Series S8E1: Lupus and Fibromyalgia
This episode explores the complex relationship between lupus and fibromyalgia, focusing on definitions, symptoms, overlapping conditions, treatment approaches, mental health implications, cultural influences, lifestyle factors, diagnostic tools, and the importance of patient advocacy. Experts Drs. Peter Izmirly and Kelly Corbitt provide insights into the challenges faced by patients with both cond
The Expert Series S7E2: Race-free eGFR Calculations and Implications for People Living With Lupus Nephritis
Drs. Ashira Blazer and Denise Kimbrough discuss the recent removal of the African American/Black race coefficient from the Kidney Donor Profile Index (KDPI) by the Organ Procurement and Transplantation Network (OPTN). Learn about the implications for lupus patients with kidney disease and the potential impacts on health equity.
Episode Takeaways:
Lupus-related kidney disease (lupus nephritis) d
The Expert Series S7E1: Lupus Nephritis
March is Kidney Month! Join us for a conversation with Dr. Brad Rovin, an expert in autoimmune kidney disease, where we talk about lupus nephritis and kidney health for people with lupus.
The Expert Series S6E6: Lupus and Cancer
In this episode, we talk with Dr. Sasha Bernatsky, about lupus and cancer, if there’s a link between lupus and cancer, and a new abstract about cancer incidence and risk factors in a large SLE cohort.
Dr. Bernatsky is a rheumatologist, a James McGill professor and a senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the M
The Expert Series S6E5: Stress and stress management
In this episode of the Expert Series, we speak with Dr. Christie Bartels about stress and stress management for people with lupus. Dr. Bartels covers how to manage stress, resources to manage stress and the difference between stress symptoms and lupus symptoms.
Dr. Bartels is Division Chief of Rheumatology at the University of Wisconsin School of Medicine and Public Health and Chair of the Americ
The Expert Series S6E4: Lupus and teens
In this episode of The Expert Series, Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children’s Hospital at Montefiore in New York, talks with us about how lupus affects teenagers, how they can cope with lupus, and how to communicate with health care providers as teens get older.
Her research focuses on improving mental health and disease outcomes in youth with lupus and has been funded
TES Bonus Episode: The Awakening: When lupus looks like mental illness
In this episode of The Expert Series, Dr. Anca Askanase, professor of medicine, the founder and director of Lupus Center and director of Rheumatology Clinical Trials at the Division of Rheumatology of the Columbia University Irving Medical Center in New York City, will be sharing about her role in the successful treatment of a catatonic woman who awakened after 20 years.
Read the article on Apri
The Expert Series S6E2: Visible Symptoms of Lupus
In this month’s episode, we learn more about visible symptoms of lupus with Dr. May Choi. Dr. Choi will discuss the difference between visible and invisible symptoms, treatment options, and ways to cope with visible manifestations of lupus.
Dr. Choi is a rheumatologist, clinician scientist, and Assistant Professor at the Cumming School of Medicine, University of Calgary.
Resources
Check out ou
The Expert Series S6E1: Invisible Symptoms of Lupus
Dr. Cynthia Aranow explains the impact of invisible symptoms in this episode of The Expert Series. Learn the difference between a sign and symptom and how to discuss this topic with your health care team and loved ones.
Review these resources to learn more about this topic:
https://www.lupus.org/resources/understanding-the-invisible-impact-of-lupus
https://www.lupus.org/resources/ten-things-to-
The Expert Series S5E13: Remission: Can my lupus go away?
There is no set definition or timeframe for what counts as lupus remission. It’s no wonder lupus remission is a confusing topic!
This month, Dr. Ronald van Vollenhoven, director of Amsterdam Rheumatology Center in the Netherlands, shares his expertise about lupus remission and inactive lupus and what it means for lupus warriors.
Learn more about lupus remission on our National Resource Center on L
The Expert Series S5E12: Step Therapy and access to medications
In this episode of The Expert Series, we explore the topic of Step Therapy and access to medications. LFA’s Health Education Specialist and Manager Ashley Holden will explain what Step Therapy is and how it can affect people with lupus.
Related resources
Check out LFA’s Policy Spotlight on Step Therapy
Medications that treat lupus
Learn how to self-advocate for yourself or a loved one here
The Expert Series S5E11: Lupus and bone health
Inflammation from lupus and treatments can affect a person’s bone density, which makes it easier for someone with lupus to break a bone. Dr. Ummara Shah, associate professor in the department of medicine at University of Rochester, discusses why it’s important for people with lupus to care about their bone health.
Dr. Shah also leads clinical trials in lupus and is involved in education of lupus p
The Expert Series S5E9: Answers from our Health Educators
La discusión de este episodio se impartió en español
Lupe y Lety, especialistas en educación para la salud de la Fundación de Lupus de América (LFA, por sus siglas en inglés), están de vuelta en un nuevo episodio respondiendo preguntas frecuentes sobre el lupus sometidas al equipo de educación para la salud.
Para enviar su propia pregunta a los especialistas en educación de la salud, llena este fo
The Expert Series S5E8: Lupus and the eyes
In this episode, we focus on eyes and how lupus can affect vision. Dr. Michelle Petri, founder and director of Johns Hopkins Lupus Center, discusses the importance of maintaining eye health when you have lupus, and what to take notice of depending on prescribed medications.
To learn more about lupus and the eyes, review a slideshow here
Related:
To see how lupus affects other parts of the body, ch
The Expert Series S5E7: Participating in Clinical Trials
Clinical trials make new and better treatments for lupus possible. In this episode of The Expert Series, we sit down and talk with Stephanie Slan, director of IMPACT+ (Improving Minority Participation and Awareness in Clinical Trials) at the Lupus Foundation of America about clinical trial participation. Stephanie also debunks some myths about clinical trials might keep people from wanting to part
The Expert Series S5E6: Fertility and reproductive health
The Expert Series is happy to have Dr. Bonnie Bermas on our episode about fertility and reproductive health.
Dr. Bermas is an internal medicine professor at UT Southwestern Medical Center focusing on rheumatology disorders. She was the Clinical Director of the Lupus Center and co-director of the Program in pregnancy and rheumatic diseases at Brigham and Women’s and Harvard Medical School.
He
The Expert Series S5E5: Self care and self management for people with lupus
In this month’s episode, we talk about self-care/self-management with Dr. May Choi. Dr. Choi is a rheumatologist, clinician scientist, and Assistant Professor at the Cumming School of Medicine, University of Calgary.
She has a background and training that include Masters of Public Health in Epidemiology at Harvard University and a lupus fellowship. Dr. Choi is also the Associate Director of Mitoge
The Expert Series S5E4: Lupus and Antiphospholipid Syndrome (APS)
In this month’s episode, we speak with Dr. Jane Salmon about Antiphospholipid Syndrome, or APS. Dr. Salmon is a Collette Kean Research Professor and the director of the Lupus and APS Center of Excellence at the Hospital for Special Surgery.
Dr. Salmon shares her insight on APS how it can affect people with lupus, treatments, and more. Tune in to learn more.
For more information on APS, read here
L
The Expert Series S5E3: Recursos Financieros Para Personas Hispanas/Latinas con Lupus (Financial Resources for Hispanics/Latinos with lupus)
This episode was recorded in Spanish. Este podcast fue grabado en español.
En este episodio, nuestras especialistas en educación para la salud, Leticia Ocaña, MPH, CHES® y Guadalupe Patiño, MPH, hablan sobre los recursos financieros que pueden estar disponibles para las personas con lupus de la comunidad hispana/latina. Los recursos que comparten incluye información que se encuentra en nuestr
The Expert Series S5E2: The Heart and Lupus
In this episode of The Expert Series, we welcome Dr. Murray Urowitz, a senior staff rheumatologist at the Toronto Western Hospital and Senior Scientist at the Krembil Research Institute and Schroeder Arthritis Institute. Dr. Urowitz helps us continue the conversation on lupus and heart health. We discuss the difference between coronary artery disease and cardiovascular disease for lupus patients,
The Expert Series S5 E1: Medication Management
In this episode of The Expert Series, we are focusing on medication management. LFA talks with Dr. Marcia Mueting, CEO of Nebraska Pharmacists Association, about the importance of connecting with your local pharmacists, what questions to ask, and what to do if you experience side effects from your lupus medications. Dr. Mueting also worked as staff pharmacist, pharmacy manager in a community pract
The Expert Series S4E12: Winter Wellness
In this episode of The Expert Series, we talk with Dr. Anca Askanase, founder and clinical director of Columbia University’s Lupus Center, about winter wellness. We discuss how to stay healthy during cold and flu season, the importance of getting a flu shot every year, and more.
To learn more about flu and vaccines for people with lupus, check out our resources on our Resource Center:
Get your ann
The Expert Series S4E11: Caring for Caregivers
In honor of National Caregivers Month, we speak with Grace Whiting, president and CEO of The National Alliance for Caregiving, on why we should give back to those who take care of us. In this episode we discuss the caregiver role, tips to stay healthy, resources, and more.
For more information on caregiving, check out our dedicated page for caregivers.
The Expert Series S4E10: Diet, nutrition and kidney health
In this episode of The Expert Series, LFA’s Senior Communication Strategist Duane Peters talks with Melanie Betz of University of Chicago. Betz, a member of the American Kidney Fund dietician advisory group, addresses the role of diet for people with Lupus Nephritis and kidney-friendly recipes.
For information on Lupus Nephritis, check out our dedicated resource page. You may learn more about how
The Expert Series S4E9: Mitos y Realidades del Lupus (Lupus Myths and Realities)
Esta discusión se lleva a cabo en español. En este episodio de la Serie de Expertos la Gerente de Educación para la Salud y Alcance Hispano, Leticia Ocaña, habla con la Dra. Cristina Drenkard, Profesora Asociada de Medicina de la Universidad Emory en Atlanta, Georgia, sobre los mitos y realidades comunes del lupus que rodean al lupus.
Si necesita más información y apoyo, consulte nuestro paq
The Expert Series S4E8: 2021 Lupus Treatment Research Updates
In this episode of The Expert Series, Dr. Diane Kamen, Associate Professor of Medicine at the Medical University of South Carolina, Division of Rheumatology, will be sharing updates regarding research for treatments in lupus. She highlights the history of autoimmunity research, stem cell research and newly approved treatments for lupus.
For more research news updates, visit: Lupus.org/News
If you
The Expert Series S4E7: Making it Work with Lupus
The Lupus Foundation of America Health Education Specialists have had increased calls and emails from people with lupus, with questions about safely returning to work. We know that this year, is a very unique one for getting back to work with the COVID-19 pandemic. But we also know that working with lupus is a very important topics for most people with lupus and one we want to make sure we cover.
The Expert Series S4E6: Men’s Health and Special Considerations with Lupus
It’s Men’s Health Month and we want to discuss how lupus affects men.
In this episode of The Expert Series, Men’s Health and Special Considerations with Lupus, we answer some important questions about men’s health with Dr. Niewold, Director of the Colton Center for Autoimmunity and Judith and Stewart Colton Professor of Medicine and Pathology at New York University Grossman School of Medicine.
For
The Expert Series S4E5: Could It Be Lupus?
Getting an early and accurate lupus diagnosis is critical to preventing long-term consequences of the disease.
In this episode of The Expert Series, Could It Be Lupus? we answer some important questions about labs and diagnostic assessments for lupus diagnosis with Dr. Adegbenga Bankole from Carillion Clinic in Roanoke, Virginia.
For more information about diagnosing lupus click here.
This episode
The Expert Series S4E3: Managing Your Journey with Lupus Nephritis
In this episode of The Expert Series, we discuss Managing Your Journey with Lupus Nephritis with Wendy Rodgers. Wendy is the Senior Manager for Community Outreach and Engagement for the Lupus Foundation of America and lupus warrior. With a background in science and education, and has lived with lupus for 21 years (and counting), she provides helpful insights into managing your lupus nephritis and
The Expert Series S4E2: Top Questions about Skin and Hair
In this episode of The Expert Series, we discuss Top Questions about Skin and Hair with Fotios Kompouras, MD. Dr. Kompouras is an Assistant Professor of Medicine and Director of the Yale Lupus Program in Connecticut. He attended St. George's University School of Medicine and worked closely with Lupus Foundation of America’s Acting Medical Director, Dr. Susan Manzi, investing novel therapeutics for
The Expert Series S4E1: Lupus & Physical Activity
In this episode of The Expert Series, we discuss Lupus & Physical Activity with Hazel L. Breland PhD, FAOTA, OTR/L. Dr. Breland is an Associate Professor of Occupational Therapy at the Medical University of South Carolina, doctoral capstone coordinator, and past president of the Association of Rheumatology Professionals, the interprofessional division of the American College of Rheumatology. H
The Expert Series S3E11: Advice from the Community
2020 was an unprecedented year. The lupus community is strong and we helped each other through this year by sharing our wisdom and compassion. In this episode, we asked both experts in the field as well as people with lupus for advice as we approach 2021.
SUBSCRIBE HERE to receive an e-mail update when new episodes of The Expert Series are released.
The Expert Series S3E9: (En Español) Educadores y Recursos de Salud de la Fundación de Lupus de América
En este episodio de The Expert Series o la Serie de Expertos, Leticia Ocaña, MPH, CHES, Educadora de la salud de La Fundación de Lupus de América comparte más información sobre cómo nuestras educadoras de la salud pueden ayudarle a entender y manejar el lupus y los recursos que puede utilizar, incluyendo: Take Charge, LupusConnect™, y Lupus Foundation of America Caregiver Toolkit.
The Expert Series S3E8: The Importance of Support
In this episode of The Expert Series, we discuss The Importance of Support with Lupus Foundation of America staff: Wendy, our Community Outreach and Engagement Manager, and Lauren, our Health Education Nurse Manager. Wendy and Lauren share more information about types of support, support groups, and helpful resources for those looking to build their support system.
SUBSCRIBE HERE to receive an e-m
The Expert Series S3E7: Kidney Health and Lupus
In this episode of The Expert Series, we discuss Kidney Health and Lupus with Dr. Brad Rovin, Nephrologist at Ohio State University Wexner Medical Center. Dr. Rovin explains what to expect from a lupus diagnosis, lifestyle considerations for healthy living, and what exciting new treatments are on the horizon for people with lupus nephritis.
This episode is sponsored by Aurinia Pharmaceuticals. Aur
The Expert Series S3E5: Reproductive Health & Lupus (Dr. Jane Salmon)
In this episode of The Expert Series, Reproductive Health and Lupus, Dr. Jane Salmon shares information about reproductive health, antiphospholipid syndrome (APS), challenges with pregnancy with lupus and tips on how to prepare for a having safe pregnancy.
SUBSCRIBE HERE to receive an e-mail updates when new episodes of The Expert Series are released.
The Expert Series S3 E4: Telehealth & Lupus (Dr. Donald Thomas)
In this episode of The Expert Series, Telehealth and Lupus, Dr. Donald Thomas shares information about telehealth and tips on how to prepare for a virtual visit with your doctor.
SUBSCRIBE HERE to receive an e-mail updates when new episodes of The Expert Series are released.
About the Presenter
Dr. Donald Thomas teaches at the Walter Reed National Military Medical Center as an Associate Professor
The Expert Series S3E3: Mental Health & Wellness in a Time of Uncertainty
Depression and anxiety has increased among Americans as the coronavirus pandemic continues to evolve.
In this episode of The Expert Series, Mental Health and Wellness During a Time of Uncertainty, Dr. Neda Gould shares information about stress and anxiety, coping strategies and will lead a brief guided meditation practice.
The Expert Series S3E2: Importance of Fatty Acids for People with Lupus
In this episode of The Expert Series, Kathryn Wierenga, one of the 2019 recipients of the Lupus Foundation of America’s Gina M. Finzi Memorial Student Summer Fellowship Award, shares more information about the Importance of Fatty Acids and People with Lupus.
SUBSCRIBE HERE to receive an e-mail updates when new episodes of The Expert Series are released.
About the Presenter
Kathryn Wierenga graduat
The Expert Series S3 E1: Lupus Foundation of America Health Educators & Resources
In this episode of The Expert Series, Lauren Metelski, RN, Health Education Nurse Manager for the Lupus Foundation of America shares more information about how our health educators can help you navigate your lupus journey and resources that you can use to better manage the disease, including:
- Take Charge E-mail Series: a weekly education email series for people with lupus, including those recent
About The Expert Series
The Expert Series by the Lupus Foundation of America is an educational podcast series featuring empowering conversations with leading lupus experts with a focus on helping you live well with lupus.
Each month, lupus experts will offer invaluable insight on a variety of important topics, providing you with the knowledge you need to better manage the disease.
New segments of The Expert Series a
