The Pituitary World News Podcast
The Pituitary World News Podcast is a medical education show focused on pituitary disorders. Hosted by Dr. Lewis Blevins and Jorge D Faccinetti, it aims to improve early diagnosis through expert interviews and patient stories. Each episode covers the complexities of pituitary conditions with insights from professionals and those living with the diseases.
Episodes
S12E12: Catching Up with Dr. Mario Maldonado: Milder Cushing's, AI, and What's Ahead
In this episode, Dr. Mario Maldonado from Recordati Rare Diseases discusses recent advances in endocrinology, focusing on hypercortisolism, diagnostic challenges, and innovative treatments. He shares insights from clinical studies and the future of AI in disease management. We touched on the important of the increased awareness awareness of milder hypercortisolism forms, the challenges in diagno
S12E12: Diagnosed with a rare disease — now what?
In this episode, we talk about what newly diagnosed patients are going through, the challenges that can overwhelm even the most centered person, the potential isolation, and how hard it can be to find good information even when it's out there. We get into something we care a lot about: the gap between all the great medical research on acromegaly and the practical, everyday guidance patients many t
S12E11: Personalized care in acromegaly: Understanding the updated treatment algorithm
In the final episode, Professor Maria Fleseriu and Professor Mônica Gadelha discuss the updated treatment algorithm, treatment sequencing, and management approaches for patients with resistant disease.
This educational podcast series is intended for US healthcare professionals only. It was developed by expert faculty in collaboration with The Pituitary Society and Amiculum, with support from Recor
S12E10: S12E10: From biomarkers to best practice: Predicting response to medical therapy in acromegaly
Professor Maria Fleseriu and Professor Mark Gurnell focus on predictors of response to medical therapy, including the role of imaging characteristics, pathological and molecular markers, and biochemical parameters in guiding treatment decisions to support individualized patient care.
This educational podcast series is intended for US healthcare professionals only. It was developed by expert facu
S12E9: Setting the standards in acromegaly care: Consensus definitions and clinical assessments
In this episode, Professor Maria Fleseriu and Professor Shlomo Melmed discuss the development of the consensus recommendations and explore how remission and disease control should be defined and assessed in clinical practice. They also highlight the importance of identifying and managing comorbidities, a key focus of the updated recommendations.
This educational podcast series is intended for US h
S12E8: Inside the PWN Books Series
In today’s LIVE-TALK podcast, we chat about our recently published series of books. We highlight Dr. Blevins’ prolific writing output in the PWN self-published book series, with five titles on pituitary adenomas, diabetes insipidus, Cushing’s, hypopituitarism, and pituitary disorders; a TSH-producing tumor book (in editing); a prolactinoma volume heading to the publisher; and an acromegaly book p
S12E7: After 36 Years a Breakthrough for Hypothalamic Obesity
Our live talk sessions of the pituitary and adrenal podcasts continue with this extremely informational conversation on hypothalamic obesity. If you are interested in learning more about his devastating disorder, please listen to Dr. Blevins as he shares his insights and extensive expertise on its causes, new treatments, and latest developments. He explains the underlying biology: fat cells pro
S12E6: A spontaneous, candid exploration of health insurance issues, and what can we do about it
In today's podcast, Dr. Blevins and I discuss the health insurance landscape as it relates to medication, tests, and procedure approvals and denials. Dr. Blevins gives us an unfiltered look at what it is like to deal with these challenges and their effects on the practice of medicine and medical decision-making. Don't miss this segment and stay tuned for more of these insightful, genuine, and ungu
S12E5: Acromegaly up close: struggles, awareness, and why early diagnosis matters
In today’s podcast, we’ll dive into the personal journeys of two very interesting and accomplished people who have dealt with this disease and will share their experiences, and importantly, their opinions, shedding light on symptoms, diagnosis, the struggles and frustrations, and the importance of awareness to affect early diagnosis and to manage the condition effectively.
I’m delighted to welco
S12E4: The science behind three-month Octreotide formulation
In today's podcast, we talk to Anne Vaslin Chessex, Global Program Leader at Debiopharm International. In this dynamic chat, we explore Debiopharm's innovative three-month formulation of Octreotide for acromegaly, highlighting the science, clinical trials, and patient benefits. Gain insights into drug development, patient-centered approaches, future treatment options, and learn how to participat
S12E3: Closing the Gap: Dr. Francesca Galbiati on Diagnosis, AI, and the Promise of Better Care
Today we welcome to our podcasts Dr. Francesca Galbiati who recently joined the California Center for Pituitary Disorders at UCSF, where she cares for patients with pituitary tumors, acromegaly, Cushing's disease, and related hypothalamic conditions. She is originally from northern Italy and the first in her family to attend college, her path into medicine was driven by a love of science, a desire
S12E2: Behind the scenes with Crinetics cofounders Drs. Scott Struthers and Stephen Betz.
In today's podcast, Crinetics co-founders Dr. Scott Struthers and Dr. Steve Betz share their views and experiences in drug discovery and development, revealing what it really takes to bring a new medication from concept to patients. We discuss their recently approved drug for acromegaly, Paltusotine (Palsonify™), along with their pipeline plans for Cushing's disease and congenital adrenal hyperpla
S12E1: Inside Camurus: Dr. Markus Johnsson talks about FluidCrystal® technology and next-generation treatment Innovations
In the latest episode of the Pituitary World News podcast, Jorge D. Faccinetti sits down with Dr. Markus Johnsson, Senior VP of R&D at Camurus, to explore the fascinating world of FluidCrystal® technology. This innovative approach promises to revolutionize the way we think about drug delivery, providing long-lasting solutions for chronic diseases particularly for people with acromegaly. Markus
S11E12: Un programa de Inteligencia Artificial para la diagnosis precoz de la Acromegalia
En el podcast de hoy hablamos con el Dr. Manel Puig Domingo sobre un estudio innovador que él encabezó y que se describe en un artículo reciente publicado en la revista PITUITARY. El artículo plantea la posibilidad de que los algoritmos de IA y el aprendizaje automático podrían proporcionar un enfoque revolucionario para el diagnóstico temprano de esta enfermedad compleja, cuyo diagnóstico actualm
S11E11: Game Changers: An AI Facial Recognition System that detects acromegaly 10 years before diagnosis
In today's podcast we talk with Dr. Manel Puig Domingo about an innovative study he spearheaded and outlined in a recent paper published in the journal PITUITARY. The paper raises the possibility that AI algorithms and machine learning could provide a game-changing approach to the early diagnosis of this complex disease, which now takes an average of 6 to 10 years to diagnose. The paper outlines
S11E10: For a clinicians perspective we talk with Dr. Kevin Yuen about Crinetics' new acromegaly drug Palsonify™.
In today's podcast, Dr. Kevin Yuen, a world-renowned neuroendocrinologist, frequent PWN contributor, and medical director of the Barrow Neurological Institute, discusses Crinetics' new acromegaly drug Paltusotine (Palsonify™). The drug was recently approved by the Food and Drug Administration. Dr. Yuen explains how this new medication works and provides an excellent clinical perspective on his vie
Trust But Verify: The Rise of AI-Generated Health Information
Can Artificial Intelligence make medical research easier to understand? This AI-generated content (we hesitate to call it a traditional "podcast") was brought to our attention by one of Dr. Blevins' patients, who discovered it in a Facebook patient group. The creator used a well-known AI platform to analyze one of Dr. Blevins' recently published papers on PWN, translating the complex medical lang
S11E9: Dr. Lewis Blevins on Corcept's CATALYST Study: The Cortisol-Diabetes Link
In today's podcast, Dr. Lewis Blevins dives into the fascinating findings from a study by Corcept Therapeutics on the prevalence of hypercortisolism in people with type 2 diabetes. Results from this study, called CATALYST, were recently published by Corcept and presented at various scientific and medical conferences. Dr. Blevins explains the findings and offers his expert insight.
S11E8: Dr. Lewis Blevins on promising developments in cortisol management
In today's podcast, Dr. Lewis Blevins discusses relacorilant, a drug currently in development by Corcept Therapeutics for the treatment of hypercortisolism. Clinical trials to date have shown encouraging results, with improvements in blood pressure, glucose control, weight, and body composition. Corcept Therapeutics specializes in developing drugs that modulate the glucocorticoid receptor.
Stay
S11E7: We dive into the new indications for Isturisa® with Recordati's Dr. Mario Maldonado
This is a very informative discussion about the new indications of the Cushing's Drug Isturisa® (osilodrostat) with Dr. Mario Maldonado, who heads global development for endocrinology at Recordati Rare Diseases. The Food and Drug Administration recently approved the drug for endogenous hypercortisolism (excessive production of cortisol in the body). If you want to learn more about this fascinat
S11E6: Camurus: an inside look and my conversation with CEO Fredrik Tiberg
CAM2029 represents a significant advance replacing cumbersome deep muscle injections with a user-friendly pen device similar to modern insulin and GLP-1 delivery systems. The practical benefits are remarkable: monthly administration, storage at room temperature, and no more traveling with cooling equipment. These improvements may seem incremental to outsiders, but for patients managing acromegaly,
S11E5: When It Looks Like Cushing’s But It Isn’t
We are delighted to welcome Dr. Leena Shahla to the Pituitary Podcast. She is the director of The Duke Pituitary Program. Today she joins PWN co-founder and medical director of the California Center for Pituitary Disorders at UCSF, Dr. Lewis Blevins, for an in-depth discussion about pseudo-Cushing's syndrome.
In the Duke Health web portal, Dr. Shahla says endocrinology captured her heart because i
S11E4: Side effects of dopamine agonists: a discussion
In this podcast, Dr. Blevins reviews the side effects of dopamine agonist drugs. These are drugs that activate certain types of cells in the brain to regulate various functions, including hormone regulation, movement, and motivation. Dr. Blevins's discussion focuses on the drug cabergoline and its side effects, citing several research studies. This is a fascinating review of side effects you won't
S11E3: Cool chats
Sometimes conversations take interesting turns and often lead to surprising and unexpected discussions. If you're a regular listener of the Pituitary Podcast, you may have caught a few of our live broadcasts where these unscripted discussion are common.
Today I'm joined by Risa August, a patient and advocate and a frequent guest sharing her work, adventures and advocacy efforts, for one of those e
S11E2: Acromegaly; a discussion about psychological and emotional health support initiatives
Today's podcast is about an important Chiesi Rare Diseases initiative to learn more about the psychological, social, and emotional health issues facing acromegaly patients. We talked to Stuart Siedman, Chiesi's Vice President of advocacy. Stuart has an extensive background in rare diseases and a personal connection as an advocate. This is an important subject. We hope you will help by participa
S11E1: Two leading acromegaly experts discuss promising treatment options
In today's podcast, we are excited to welcome Dr. Joanna Spencer-Segal, a research assistant professor at the Michigan Neuroscience Institute and an assistant professor in the Department of Internal Medicine, Division of Metabolism, Endocrinology, and Diabetes at the University of Michigan. She joins Dr. Lewis Blevins and me to discuss the promising new treatment options for acromegaly.
Our conver
S10E8: Podcast series with industry leaders: meet Dr. Scott Pescatore, Head of Global Head of Global Operations at Recordati Rare Diseases.
I am pleased to welcome Dr. Scott Pescatore to the Pituitary Podcast. In today's podcast, we discuss some of the work being done in the pituitary and adrenal space. Dr. Pescatore's - and other industry leaders we've featured on the Pituitary Podcasts - opinions and points of view are essential to developing current and future therapies and potential new treatments affecting access to medications
S10E7: A conversation with Recordati's Dr. Mario Maldonado
Today's podcast features my chat with Dr. Mario Maldonado, Head of Development and Global Endocrinology atRecordati Rare Diseases. Dr. Maldonado brings a wealth of experience and a great perspective on drug development. He was involved in developing both pasireotide and osilodrostat, two essential compounds used in drugs to treat Cushing's. Listen to this fascinating talk with one of the most d
S10E6: Mental Health challenges and opportunities in pituitary disease
Mental health is an ongoing challenge for people dealing with Pituitary conditions, from brain fog to anxiety to downright depression. These and other emotional issues are some of the most talked about and commonly related when people talk about what it's like to live with one of these devastating conditions. Today's podcast brings together two leading experts in mental health and pituitary disea
S10E5: The FDA listens to acromegaly patients
Today's podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications. Our conversation focuses on the original meeting held in 2021 and a recent listening session where the AC provided additional feedback to the FDA. These meetings
S10E4: Amplifying knowledge of Cushing's; every day, every month, every year.
On today's podcast and Cushing's awareness day and month, we bring you a few excerpts from our soon-to-be-released new book on Cushing's. The book's author and Pituitary World News cofounder, Dr. Lewis Blevins, reads from a few selected chapters to give insight into the book's content. We are delighted to present these excerpts to join the many organizations, patients, and healthcare professional
S10E3: A remarkable acromegaly story of transformation.
Today’s podcast is about our super athlete friend Risa August and her new book, “The Road Unpaved.” We first met Risa in 2019 when she came to the Pituitary World News/UCSF patient gathering. We chatted about her experience and and her plans to ride her bike from Canada to Mexico. We followed her herculean effort to ride 1845-plus miles to get from Canada to Mexico on the Pacific Coast Highway, w
S10E2: A view from across the pond: The Spanish Endocrine Society Conference
The Spanish Endocrine Conference was organized late last year by the "Sociedad Española de Endocrinologia y Nutricion (SEEN). SEEN offers an excellent resource for information to the Spanish-speaking world. Spain and Spanish-speaking countries have been our focus as we seek to develop more content in Spanish for our edition of Pituitary Word New in Español. Today's podcasts covers part of the conf
S10E1: Our chat with Giacomo Chiesi
In today's podcast, we talk with Giacomo Chiesi, Head of Global Rare Diseases at the Chiesi Group, where he leads a team in developing and marketing treatments for rare and ultra-rare diseases. Chiesi, headquartered in Parma, Italy, is a family-owned enterprise in an industry not known for many family businesses. Chiesi entered the acromegaly space when the company recently acquired Ireland-base
S9E16: Denials and other shenanigans: insurance companies and the games they play
Today's' podcast is a recording of the Pituitary World News talk program that aired live on November 16. The information comes directly from one of the busiest, most successful clinics in the world of pituitary disease. The podcast presents a real-world, honest, in-depth discussion of health insurance denials, how this practice affects patients and physicians, how they use guidelines to muddy the
S9E15: Veronica’s experience with a Prolactinoma
In today's podcast, Veronica, an MBA graduate of Notre Dame University and law school student, tells us about her experience with a prolactinoma. What is interesting about this story is that in pituitary medicine, where delays in diagnosis and general unawareness are all too often the order of the day, this is a perfect example of how awareness and smart thinking make things work as they are suppo
S9E14: Double pituitary adenomas: a case from Dr. Blevins clinic.
Podcast and Video: In today's podcast and accompanying video of this MRI, Dr. Blevins discusses and illustrates a case of a patient with a double pituitary adenoma. He also talks about the types of adenomas that can produce several hormones. Listen to Dr. Blevins as he discusses this case and shows us a video of the MRI.
This MRI video illustrates the double pituitary adenomas discussed in the
S9E13: Our Chat with Crinetics CEO Dr. Scott Struthers.
Today, Dr. Scott Struthers talks to PWN about paltusotine, their new once-a-day acromegaly oral drug candidate. Crinetics recently published results from the latest phase of the paltusotine clinical trial. He discussed the results and provided a fascinating look at the details and their learning from the data as they analyzed these initial results. He also shared the status of a new drug for Cushi
S9E12: Endocrine nursing: a panel discussion
Today, I am particularly thrilled about this podcast with a group of leading professional nurses who are educators, scientists, researchers, nurse practitioners, and graduate students. Their work is critical to pituitary patients' care and quality of life. It affects how endocrine nurses practice and how they are trained, what they learn, and how they do their jobs. In this podcast, you will hear
S9E11: Pituitary Grand Rounds.
Listen to this podcast and learn more about this new groundbreaking educational program exclusively produced by Pituitary World News. And later this week, don't miss the first episode of this exciting initiative. Stay tuned!
S9E10: Understanding the patterns of disease
In this brief podcast, Dr. Blevins relates a fascinating Cushings case to talk about the importance of understanding disease patterns and how depth of knowledge gives physicians the critical skills to recognize unusual conditions.
S9E9: A growing challenge: noncompliance with follow ups and prescriptions
Noncompliance with required Doctor follow-up visits and properly taking medications is a serious issue. Dr. Blevins tackles this problem with real clinical examples in this brief podcast.
S9E8: Pituitary Foundation UK: helping people live a better life
Listen to this informative podcast with Ren Renwick, CEO of the Pituitary Foundation in the United Kindom. The foundation is a leading volunteer organization providing a variety of resources and support functions for people with pituitary disease. These include helplines with nurses and patients where people can ask medical and practical questions and a variety of helpful resources for patients' p
S9E7: Brain fog and pituitary clinical cases
Continuing our recent coverage of brain fog, Dr. Blevins and I discussed a few examples from his clinical practice and personal experiences with the condition. We also cover a fascinating case from his clinic about a patient with an empty sella incidental finding and residual disease. We covered a lot of ground and interesting subjects in this session you don't want to miss, including how medicine
S9E6: Two Cushing cases and a forward look
With today's podcasts from this week's live-talk show, Dr. Blevins recaps our content dedicated to Global Cushing's month with a talk about two fascinating recent Cushing cases from his practice. He also touches on some very interesting caveats about thyroid hormone replacement. Then, after a surprise musical interlude (you'll have to listen to find out), we discuss the current social media challe
S9E5: Adrenal Cushing’s: a conversation
Listen to this fascinating discussion of adrenal Cushing's or hypercortisolism as Dr. Lewis Blevins walks us through the disease's characteristics, biochemistry, and treatment options. In the talk, he focuses on different conditions, including adrenal adenomas, adrenal cancer, adrenal hyperplasia, and other related diseases like Carney Complex and McCune-Albright syndrome. Dr. Blevins also focuses
S9E4: Insights on medicine and mental health: a perspective
Today's program focuses on interactions between the medical and psychological worlds. Join Dr. Blevins and me as we welcome PWN contributor, marriage and family therapist, and author Linda Rio for a fascinating discussion on how pituitary disease, or any chronic disease, manifests itself mentally and emotionally. Listen as we muse on how emotional health and psychological distress can affect peopl
S9E3: A story about a nurse with acromegaly
Meet Laura Cheng. Laura is a nurse. She has acromegaly. She works as a clinical nurse and is currently enrolled in the endocrine certificate program and pursuing a Master's Degree in nursing at Duke University. Laura's connection to this disease gives her a unique perspective and will provide an invaluable resource to her patients. We caught up with Laura a few weeks ago. This is her story.
S9E2: Dr. Sylvia Asa discusses her groundbreaking work in endocrine pathology
This week's Live-talk offers critical knowledge that people affected with pituitary and endocrine diseases need to know to ensure they receive proper treatment. Dr. Sylvia Asa, a pioneer in endocrine and pituitary tumor pathology, talks with Dr. Lewis Blevins about her work in the field and the reclassification of pituitary adenomas to Pituitary Neuroendocrine Tumors, or PitNets, which she recentl
S9E1: Insurance challenges, clinical cases and much more
In our first live-talk session of 2023, we focus on critical topics, including insurance delay trends affecting pituitary medical practices, interesting clinical cases we can learn from, where telemedicine is going after the Covid era, and more commentary from the subjects we covered in our recent "briefing and insights" article. Please stay tuned for an announcement on the next live-talk discuss
S8E30: Access to medications: challenges and opportunities
Pituitary World News has undertaken an initiative to understand and share the complicated issues related to medication access so patients can join us in advocating for a better system. In that tangle, we find insurance companies, orphan drug manufacturers, specialty pharmacies, pharmacy benefit managers (PBMs), prescribers, and others that add to the costs and complicate access. The issues get ev
S8E29: New drugs and therapies in the pipeline for acromegaly and Cushing’s
Today we present an excellent discussion with Dr. Alan Krasner, Chief Medical Officer for Crinetics Pharmaceuticals. Dr. Krasner speaks to PWN about two very important drugs currently under development. Learn about what is coming, the timelines, potential new therapies, and approaches in acromegaly, Cushing's, and hyperinsulinism. These are exciting times in the field with a forward-thinking, crea
S8E28: Adenomas and Pituitary Neuroendocrine Tumors
The ongoing debates and nomenclature change and reclassification are apparently over, and adenomas and now referred to as Pit-Net's (pituitary neuroendocrine tumors). Is this good, bad, or indifferent? These are complicated matters, so to shed some more light on the subject, we've invited some experts to discuss them. In today's live talk, I'm joined by co-host and PWN cofounder Dr. Lewis Blev
S8E27: Pseudo Cushing’s syndrome: a discussion and a case study
In today's podcasts, Dr. Blevins talks about the genesis of pseudo Cushing's syndrome and illustrates a fascinating case of pseudo Cushing's syndrome due to alcohol ingestion.
S8E26: What is medical decision-making
What does medical decision-making mean, and what is involved? What are pituitary specialists thinking about when faced with decisions on how to treat a patient? This live talk session aims at answering these tough questions. Dr. Blevins walks us through the case of a patient with high cortisol to illustrate the types of decisions physicians make and what those decisions are based on when trying
S8E25: Lab result targets
In this podcast from our "musings series" comes an interesting discussion on lab result targets. This case comes from a hypothyroid patient who wanted to achieve a particular TSH lab result target. In the discussion, Dr. Blevins focuses on how the pituitary works, how lab tests work, and what makes aiming at and achieving a narrow target almost impossible.
S8E24: Pituitary surgery: before, during and after
Do you ever wonder what happens in the OR after you are wheeled in? We welcome once again our friend and contributor, Manish Aghi, M.D. Ph.D., Attending Neurosurgeon at the California Center for Pituitary Disorders, Professor of Neurological Surgery, and Principal Investigator at UCSF Brain Tumor Research Center. He spent an amazing hour with Dr. Blevins and me, walking us through his work with pa
S8E23: Awareness and knowledge
To continue our focus on pituitary awareness month, this session touches on various issues related to awareness and its importance as a critical factor in reducing the time to diagnosis. Dr. Blevins illustrates a few cases of hypercortisolism from his busy clinic to explain the elements that make pituitary disease complex to diagnose and treat. Many excellent examples to add to your knowledge! Ple
S8E22: A chat with preeminent pituitary neurosurgeon Dr. Sandeep Kunwar
If you didn't have a chance to hear it live, here's a podcast from the live talk session from last Thursday with special guest, PWN friend, and contributor pituitary neurosurgeon Dr. Sandeep Kunwar. He joined Dr. Lewis Blevins for a great discussion of the latest in pituitary surgery and disease management. These are two of the most experienced pituitary physicians in the world, providing a perso
S8E21: Hair and hormones
An informative discussion on the effects of hormones on hair loss, a common occurrence for people dealing with pituitary conditions. In this LIve-talk session, Dr. Blevins discusses the facts and the myths.
S8E20: On this live talk session: a path to better systems
On our Live-talk program today, a fascinating, nothing left on the table, discussion about a variety of topics that affect pituitary patients; from access to medication and therapies to problems with social media and misinformation to the complexities of diagnosis and refuting diagnosis to the role of the doctor and the patient in getting involved to solve many of these challenges. This is an ecle
S8E19: Diabetes Insipidus: a common condition for Histiocytosis and Pituitary conditions
Today's podcast focuses on an opportunity to learn about a group of rare diseases that share a common condition with pituitary disease. Histiocytosis or histiocytic disorders are a group of rare diseases that occur when there is an overproduction of white blood cells known as histiocytes that can lead to organ damage and tumor formation. DI impacts almost 50% of Histiocytosis patients and 35% of p
S8E18: Residual and recurring Cushing’s
It's always fascinating to listen to two of the recognized experts and leading clinicians in Cushing's disease discuss their experiences with the disease and patients. In this "Live Talk" session, Pituitary World New's innovative program for education and awareness, Dr. Kevin Yuen and Dr. Lewis Blevins bring an intimate, revealing look at their approaches to Cushing's disease and syndrome. The d
S8E17: Pituitary dysfunction after Traumatic Brain Injuries (TBI)
In this podcast, Dr. Lewis Blevins discusses traumatic brain injury (TBI) and hypopituitarism with Dr. Tamara Wexler, a nationally recognized neuroendocrinologist and expert in pituitary dysfunction after a brain injury. They focus on the many aspects of assessing pituitary function in people with traumatic brain injuries. Dr. Wexler's research efforts focus on pituitary dysfunction after brain in
S8E16: Advocacy and Cushing’s: a chat with the CSRF
I'm happy to welcome Leslie Edwin, president of Cushing's Support and Research Foundation (CSRF), to our microphones. The CSRF is a leading Cushing's disease and syndrome patient support organization. We talked about the opportunities and barriers for Cushing's patients and advocates. Geri Brown, a Cushing's patient and member of the CSRF, also joined us to talk about her perceptions as a new grou
S8E15: Emotional well being, mental health and the pituitary
Mental health and emotional wellness are essential topics for pituitary patients, their families, and friends. This on-demand session from last Thursday's live-talk program focuses on the challenges and opportunities when considering these issues. This is a compelling discussion from the psychological and the medical point of view about the importance of putting people's mental and emotional well-
S8E14: Medical decision making
Decisions made by doctors and their patients can be some of the most complicated, difficult decisions to make. They cover choices of treatment, medications, desired outcomes, and a host of complex variables that play a role in a person's health. It is perhaps one of the least understood aspects of the doctor-patient relationship. This session focuses on the factors that influence medical decision-
S8E13: The semantics of pituitary conditions
Semantics, or by definition, the way we relate to different meanings of words or other symbols, are essential to medicine and pituitary medicine. The words we use to communicate and inform are critical. In our session today, we discuss the semantics of pituitary medicine and underline the importance of describing things accurately. Brain tumors and pituitary tumors are they the same? What is the d
S8E12: The world of endocrine nursing: a chat with Dr. Chris Yedinak
In this podcast, we dive into the world of endocrine nursing with Dr. Chris Yedinak from the Oregon Health and Science University. Chris is a family nurse practitioner and clinical research trials coordinator who oversees patient care at the OHSU Northwest Pituitary Center. Educated in Sydney, Australia, Chris has a background in psychiatric nursing care and tertiary education. Her research inte
S8E11: A conversation with Amryt’s new president for the Americas, Sheila Frame
We caught up with Sheila a few weeks ago at the Acromegaly Community Conference near San Francisco. We had a captivating chat about Mycapssa (oral octreotide), the new and only oral medication for the treatment of Acromegaly, where we learned about the drug since its introduction 18 months ago. But we also wanted to know about Amryt, a newcomer to the US and soon to all the Americas. We talked abo
S8E10: Valuable insights from actual pituitary medicine practice
This session presents more musings based on the actual practice of pituitary medicine. These insights derived from real cases include discussions of issues with Growth Hormone and the problems physicians have when they prescribe it. You don't want to miss this enlightening segment. Also, in the session, the recent Covid-19 surge and dexamethasone dose adjustments, and an interesting empty sella wi
S8E9: Live-Talk Session 6: May 19, 2022 - Biotin’s effect on lab tests
Dr. Lewis Blevins talks with guest Dr. Saleh Aldasouqi, Professor, Chief, Division of Endocrinology and Metabolism, and Clinician at Michigan State University Specialty Center, Endocrinology Clinic, about Biotin use and its interference with laboratory tests. This is definitely something you need to know to plan discontinuance of the supplement to allow for lab testing. You won’t want to miss this
S8E8: Advocacy: patient needs and support
Our live talk session from May 12 is now available on-demand with guests Jill Sisco, president of the Acromegaly Community, and Sharmyn McGraw from the Pacific Neuroscience Institute. This was a fascinating perspective on the challenges and opportunities for patient advocacy programs with two of the leading patient advocates in the world of pituitary disease, specifically Cushing's and acromegaly
S8E7: Central adrenal insufficiency: critical information for stress dosing and pituitary surgery indications
A highly informational "live-talk" session from Dr. Blevins. The first segment covers the indications for pituitary surgery for patients with pituitary adenomas. In the second half of the program, he discusses critical information for patients with Central Adrenal Insufficiency due to hypothalamic or pituitary disease. Some of this information is applicable to those who have primary adrenal ins
S8E6: LIVE TALK - Complications of surgery and symptoms and signs
If you missed our live broadcast of Pituitary World News's new radio-style call-in show, here's your chance to listen to the recording. In session three, we cover the many possible complications from pituitary surgery in terms of pituitary function and the anatomy around the gland. This is a comprehensive review of potential consequences that all pituitary patients, whether they have had, or are a
S8E5: Diabetes Insipidus and a discussion about endocrine tests
In our second Live Talk session, Dr. Lewis Blevins discusses the normal ranges of endocrine lab tests and shares examples from his pituitary practice. Also, our guest this week, Pat Gildroy, who manages the Diabetes Insipidus Facebook group, Got DI, joins us for a fascinating discussion about this condition.
S8E4: Dr. Manish Aghi talks about headaches and pituitary tumors
In the first Pituitary World News LIVE TALK radio-style program, our guest Dr. Manish Aghi discusses the many facets of headaches and pituitary tumors. If you missed the live broadcast, here is the show's podcast. Tune in to LIVE TALK every Thursday from 3:00 pm PST - 6:00 pm EST for the opportunity to call in and participate in these live conversations with pituitary experts and stakeholders.
Fo
S8E3: A case of a pituitary lesion (hemangiopericytoma)
In this podcast oriented to physicians, Dr. Lewis Blevins talks about a case of a patient with a pituitary lesion called a hemangiopericytoma invasive in the right cavernous sinus. Although the content is technical, patients and other interested parties may find the discussion interesting.
S8E2: Recorlev (Levoketoconazole)
In today's podcast directed to physicians, PWN co-founder Dr. Lewis Blevins discusses the drug Recorlev® (levoketoconazole) recently approved by the FDA to treat endogenous Cushing's Syndrome. While this podcast contains medical and technical terminology, we encourage patients to listen to it and discuss it with their physicians.
S8E1: A Cushing’s tale: Two images. Eight months. Same person.
To launch the eighth season of the Pituitary World News podcast, we welcome to our microphones, Brandy. Brandy has quite a story to tell us about her battle with Cushing’s disease and her diagnosis. Brandy is an American Sign Language (ASL) professional interpreter and an accomplished artist, blogger, and musician. We caught up with Brandy a few days before the Holidays to chat about her experien
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Busted Open
Deadline: White House
Crickets Corner
History of the Earthquake and Fire in San Francisco
