The CF Together Podcast
The CF Together Podcast shares stories and builds community for people living with cystic fibrosis. Each episode features voices from the CF community, researchers, and clinicians. Topics covered include fertility, parenting, ageing, menopause, chronic pain, and life after transplant. The podcast aims to keep listeners updated on the latest research and provide support through shared experiences.
Episodes
Stronger Together Series (EP 3) - A conversation on living a meaningful life with cystic fibrosis (CF)
In this episode of Stronger Together, Kelly Exner, Clinical Services Manager, is joined by Adam Holmes from Community and Professor Keith Ooi for an insightful conversation about what it means to live a meaningful and fulfilling life while living with cystic fibrosis (CF).Together, they explore the challenges and opportunities that come with CF, the importance of connection, purpose and wellbeing,
Re Release - CF Strong - Peter Oxford's Story
This episode of the CF Together podcast is a special re-release, originally published on 13 February 2021 as part of the CF Strong iniatitive.Host Keegan Bakker, former radio presenter and now CEO of Audata sits down with Peter Oxford, producer of Showcase (the Australian Dance Championships) and cabin crew member for Virgin Australia.Peter shares his experience of growing up living with cystic fi
Stronger Together Series (Ep 2) - A conversation with Tamarah Katz, MSc (Nutr and Diet) on how nutrition in CF care is evolving.
In this episode of the Stronger Together series, Dr Keith and Adam are joined by Tamarah Katz, Senior Respiratory Dietitian at Sydney Children’s Hospital and researcher at the University of New South Wales.With over 15 years’ experience working alongside families of children living with cystic fibrosis, Tamarah shares her insights into how nutrition in CF care is evolving. From the traditional “le
Meet our new CEO Kate Johnson
Kate joins us at an exciting time for the organisation, bringing fresh energy, strong leadership, and a clear vision for the future of CF Together. In this conversation, we take a moment to get to know Kate, her background, what drives her, and why she’s so passionate about advancing progress for the CF community.From strengthening connections to shaping what’s next, Kate shares her hopes for the
Stronger Together Series (Ep 1)- A Conversation with Dr Bernadette Prentice on CFRD and Treatment Burden
In the first episode of our Stronger Together series, Dr Keith Ooi and Adam Holmes are joined by Dr Bernadette Prentice for an open and informative conversation about Cystic Fibrosis Related Diabetes (CFRD) They also discuss the realities of treatment burden when living with CF, in particular the impact of modulator treatments.They explore what CFRD is, how it’s diagnosed and managed, and the impa
Living Longer with CF - Reflections from Kelly Exner (Final Series Episode)
In this FINAL episode of the Living Longer series, Kelly Exner, Clinical Services Manager, looks back and shares valuable insights on navigating this next stage of life with cystic fibrosis (CF). Drawing on her clinical experience and deep connection to the CF community, Kelly explores the challenges, opportunities, and evolving needs that come with living longer.She offers practical guidance on f
Living Longer with CF - a conversation about Careers
In this episode of the Living Longer with CF, Nardia, Jade and Louisa share their lived experiences of navigating careers while living with cystic fibrosis. They speak openly about balancing work with health needs, managing energy and treatment schedules, and how career goals can shift over time.Through honest conversation, they explore workplace disclosure, advocating for flexibility, navigating
Living Longer with CF - a conversation about Nutrition and Exercise
In this episode in the Living Longer series, Nardia, Jade and Louisa come together to share their lived experiences of living longer with cystic fibrosis(CF), with a focus on nutrition and exercise. They speak honestly about what has changed over time, what’s helped (and what hasn’t), and how their relationship with food, movement, and their bodies has evolved across different stages of life.Throu
Living Longer with CF - a conversation about Diabetes
In this honest and informative episode of the CF Together Podcast, Jade and Louisa share their lived experiences of CF-related diabetes (CFRD). They speak openly about diagnosis, daily management, and the challenges of balancing blood sugars alongside the already complex realities of living with cystic fibrosis.Through personal stories and reflection, Jade and Louisa explore the physical and emoti
Living Longer with CF - a conversation about Cancer
In this moving episode of the CF Together Podcast, Nardia shares her experience of cancer with honesty, courage, and deep reflection. She speaks openly about diagnosis, treatment, and the emotional toll cancer can take especially when navigating it alongside other health challenges.Through her story, Nardia explores resilience, vulnerability, and the importance of support, while offering insight i
Living Longer with CF - A conversation about Menopause
Living longer with cystic fibrosis (CF) means navigating life stages that weren’t always part of the conversation including menopause. In this episode of Living Longer with CF, Nardia, Louisa and Jade share their lived experiences of menopause, speaking openly about the symptoms they faced, the impact on their bodies, and how they’ve managed this transition alongside CF.Through honest reflection a
Living Longer with CF - A conversation about Transplant
In this insightful episode, Nardia, Jade and Louisa sit down to unpack the complex, emotional, and deeply personal journey of transplant while living with cystic fibrosis. They discuss what it’s really like to navigate the decision-making process, the hope and uncertainty that come with waiting, and the life-changing reality of receiving a transplant.With honesty and heart, they explore the physic
Living Longer with CF - A conversation on Dying Well.
⚠️ Trigger Warning: This episode discusses themes of death, dying well, and end-of-life planning within the context of cystic fibrosis. These conversations can be deeply emotional and may be difficult for some listeners. Please take care while listening and pause or step away if you need to.In this powerful episode of the CF Together Podcast, Nardia, Jade and Louisa open up an honest, compassionat
Living Longer with CF - A Conversation on Chronic Pain
In this episode of the CF Together Podcast, we speak with Nardia, Jade, and Louisa about living with chronic pain while managing cystic fibrosis.
They share honest insights into the physical and emotional challenges of daily life, as well as the strategies they use to maintain their wellbeing, stay active, and manage pain alongside their treatments.
Through their stories, we highlight the
Living Longer with CF - Special Series Introduction
Welcome to the CF Together Podcast and our special eight-part series, Living Longer with CF, a deep exploration into what it truly means to live a longer life with cystic fibrosis.
In this series, we dive into the important and often under-discussed parts of life with CF, including diabetes, menopause, transplant, careers, chronic pain, cancer, and dying well.
Through each episode, you’ll hear
Balancing Motherhood, Forensics, and CF: Kaitlyn’s Story
In this episode, we meet Kaitlyn, a forensic professional, devoted mum to 20-month-old Cooper, and someone living with cystic fibrosis. Kaitlyn opens up about the realities of juggling a demanding career, motherhood, and her health sharing honest reflections on “mum guilt,” resilience, and redefining what balance really looks like. Her story is a powerful reminder that living with CF doesn’t mean
Body Image and Cystic fibrosis (CF)
Lyndall Grace, our host for this episode of the CF Together Podcast, interviews Taylah about Body Image. Take a listen as they talk about their body image battles through the years - from school kids through to adulthood, now on modulators.
Following Lyndall and Taylah, Raphael catches up with Julianna, a dietitian specialising in body image. Julianna has been working in CF over the past 15 yea
Newly Diagnosed: What I Know 4 Years on | Mandy – Mother of 4-year-old Rory, diagnosed with cystic fibrosis at birth
In this heartfelt episode, host Lyndall Grace speaks with Mandy, early childhood educator, CF Together team member, and mum to four-year-old Rory, who lives with cystic fibrosis (CF). Mandy shares the emotional experience of Rory’s diagnosis through newborn screening, describing how she felt deeply overwhelmed then she and her partner focused on working together as a team, drawing on the strength
"Savannahs Story: From IVF to Natural Birth and the latest research on Chronic Pain living with cystic fibrosis
In this episode of the CF Together podcast, you will hear two heartfelt and powerful conversations from within the cystic fibrosis community.First, Lyndall Grace, who lives with cystic fibrosis, speaks with Savannah May about her incredible journey to motherhood. Savannah shares her experiences with IVF, the challenges and triumphs of parenting with CF, and the unexpected joy of conceiving her sec
The Awkward Moments living with cystic fibrosis: Quickfire QnA
In this episode, we tackle the tough, personal, and often uncomfortable questions that don’t always get talked about when we visit our cystic fibrosis (CF) team—those questions that many are thinking but may not know how to bring up.Should I wear protection during sex?Why do I keep getting thrush?Is vaping really that risky for someone with CF?What’s with the smelly farts?Can I kiss someone who ha
Self-Advocacy Living with cystic fibrosis
Finding your voice to self-advocate can feel overwhelming at times. Gen, Gloria, and Kelly share valuable insights to help navigate the first steps in confidently asking for what you need.
Carrier testing, carrier screening and cystic fibrosis (CF)
In this episode Stephanie Quattromani, Executive Manager, Services, Care and Research at CF Together catches up with Alison Archibald from Victorian Clinical Genetics Services, and Belinda McClaren from the Murdoch Children's Research Institute (MCRI) to talk about carrier testing and carrier screening.
This episode covers the difference between carrier testing and carrier screening, why people
Cystic Fibrosis, Male Fertility and becoming a DAD
In our first episode of The CF Together Podcast, Raphael catches up with James and Davie to talk about their path to fatherhood and living with cystic fibrosis (CF).
This episode will make you laugh, squirm and maybe even cry. It's a candid and raw discussion about the IVF journey that led to the magical moment when they both became Dads.
The CF Together Podcast also features expert informat
Launching The CF Together Podcast
Welcome to Season 1 of the CF Together Podcast.CF Together is a national organisation dedicated to improving the lives of people living with cystic fibrosis (CF), advancing CF care and ultimately finding a cure.We know the importance of sharing stories and creating community for people living with CF, that's why we are excited to welcome you to our first season of the CF Together Podcast.In upcomi
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