Voices of Inclusive Research
Voices of Inclusive Research is a podcast dedicated to exploring the diverse and dynamic world of inclusive research. Each episode features thought leaders, community members, and advocates who share their questions, concerns, insights, lived experiences, and groundbreaking work. The mission is to give the community a voice in clinical research, highlighting the importance of diversity and inclusivity. It aims to inspire and inform listeners about these critical topics.
Episodes
Taking the Clock Off the Table: Norchelle Brown’s IVF Journey
Conversations around fertility and IVF are often filled with stigma, silence, and stories rooted in struggle. But what happens when the conversation shifts toward empowerment, proactive care, and choice?In this episode of Voices of Inclusive Research, Dr. Renarda speaks with Norchelle Brown about her personal egg freezing and IVF journey as a Black woman navigating reproductive healthcare. From em
Why AB 1776 Could Change the Future of Clinical Research with Sam Chung
In this episode of Voices of Inclusive Research, Dr. Ren sits down with Sam Chung, Senior Vice President of Government Relations and External Affairs at California Life Sciences, to discuss California's proposed AB 1776 legislation and why many in the life sciences community believe it could significantly impact clinical research and patient access.Sam explains how the bill could unintentiona
Voices Changing Research: Reflections from Past Conversations
In this special compilation episode of Voices of Inclusive Research, Dr. Ren brings together powerful moments and voices that highlight the heart of this movement: community, trust, and representation.From the importance of physician and community partnerships to the role of mentorship and education, this conversation emphasizes that meaningful change requires both awareness and action. It also ce
How Policy and Patient Voices Are Transforming Clinical Research with Mary McGowan
In this episode of Voices of Inclusive Research, Dr. Ren speaks with Mary McGowan, President and CEO of the Foundation for Sarcoidosis Research, about the importance of awareness, policy change, and patient-centered solutions in advancing health equity.Mary shares insights on sarcoidosis, a complex and often misunderstood inflammatory disease that disproportionately impacts communities of color, e
Transforming Healthcare Through Media and Trust with Nicholas Jackson
Access to healthcare, awareness, and trust in medical research remain ongoing challenges for many underserved communities.In this episode of Voices of Inclusive Research, Dr. Renarda speaks with Nicholas Jackson, founder of iHealth Network, about how culturally tailored media can bridge communication gaps and improve clinical research participation.Nick shares how the loss of his mother and grandm
How Research Shows Up in Everyday Life
Research isn’t just happening in labs. It’s happening in your everyday life.In this solo episode of Voices of Inclusive Research, I break down how research quietly shapes the products we use, the health choices we make, and the options available to our communities every day.From health and beauty to food, fitness, and mental health, research has evolved to better reflect real people and real needs
The Future of Research in Black Communities with Dr. Crystal Glover
History shapes the present and the future of research in Black communities.In this episode of Voices of Inclusive Research, host Dr. Ren speaks with Dr. Crystal Glover, applied social psychologist and associate professor at UC Irvine, about conducting research with dignity, relevance, and respect for historically underserved communities.Dr. Glover discusses the resilience of Black communities, the
When Humanity Comes First: Rethinking Clinical Research and Equity
Trust and equity in research begin with acknowledging the lived experiences of communities.In this solo episode of Voices of Inclusive Research, I speak honestly about fear, unrest, and lived experience and how they shape health equity and clinical research participation. I reflect on the current realities impacting Black and Brown communities and why research cannot be separated from what people
Don’t Assume, Do it Right!
Health equity starts with inclusive research.In this episode of Voices of Inclusive Research, Dr. Ren speaks with Dr. Camille Campbell, Biogen’s Lead for Health Equity and Clinical Innovation, about the critical work of making clinical research inclusive and representative. Dr. Campbell shares her experiences bridging the gap between pharmaceutical research and historically marginalized communitie
Pediatric Voices in Research: Why Kids Matter in Clinical Studies with Zachariah Martinez
In this inspiring episode of Voices of Inclusive Research, Dr. Ren Jones is joined by Zachariah Martinez, the first young guest to ever appear on the podcast. Zachariah shares his personal experience participating in pediatric clinical studies and explains how getting involved not only benefited science but also improved his mood, routines, and overall well-being.Dr. Ren and Zachariah discuss what
Reimagining Health & Empowerment for Black Communities with Tony Wafford
In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Tony Wafford, founder of I Choose Life Health Foundation, about the importance of culturally grounded approaches to health education and research.Tony shares how his work blends social entrepreneurship and social justice. He uses creative strategies such as leveraging entertainment to increase HIV testing and research p
From Community Insight to Action: Transforming Clinical Research with Judy Galindo
In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Judy Galindo, site owner and co-founder of Latinos in Clinical Research, about how her team is expanding clinical trial access in Imperial County and beyond.Judy shares how Sun Valley Research Center has grown from psych CNS studies to new areas like diabetes, hypertension, and obesity, driven by her community’s health
From Struggle to Strength: Leading with Purpose in Research with Jennifer Hairston
In this episode of Voices of Inclusive Research, Dr. Ren sits down with Jennifer Hairston to explore the intersections of self-reflection, accountability, and resilience in leadership. Jennifer shares her journey of navigating career challenges, personal loss, and the drive to create inclusive and equitable spaces in the workplace.Listeners will hear how self-awareness and education provide a foun
Why “Diverse” Matters More Than “Diversity” in Research
In this solo episode of Voices of Inclusive Research, I reflect on the meaning and mission behind Diverse Research Now, and why the distinction between diversity and diverse matters.Reading from the organization’s latest blog, I explore how our language shapes inclusion, accountability, and representation in clinical research. I remind listeners that “diversity” can be a checkbox without action, w
The Future of Lupus Research: Science, Equity, and Patient Voices with Dr. Jose Rubio
In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Dr. Jose Rubio, rheumatologist and clinical researcher at the University of Alabama at Birmingham, about the future of lupus research and the importance of diversity in trials.Dr. Rubio explains how lupus is not a single disease but a spectrum of immune system misfires, which makes personalized medicine essential. He sh
Empowering Patients and Communities in Lung Cancer Care with Dr. Eugene Manley Jr.
In this compelling episode of Voices of Inclusive Research, Dr. Ren speaks with Dr. Eugene Manley Jr., lung cancer researcher, advocate, and educator, about the critical need for equity, representation, and advocacy in lung cancer care and research.Dr. Manley shares his personal experiences navigating the healthcare system, including the challenges he faced as a Black Medicaid patient during his p
Keeping Your Hair Through Chemo: What Is Cold Capping and Why Does It Matter?
In this powerful episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with survivor and advocate Chenyka “Nyka” Ramos to talk about her journey with Hodgkin’s Lymphoma, cold capping, and what it means to navigate treatment as a woman of color.Together, she and Dr. Ren unpack the larger issue of representation in research and treatment protocols—from the absence of women of color in
Brain Health and Lupus: Centering Communities in Research
“We are not bystanders, we are participants. We are partners and leaders in this space.” – Dr. Renarda JonesIn this solo episode of Voices of Inclusive Research, I open up about why this work matters and why health equity must stay at the heart of clinical research.I share why brain health and lupus, conditions that deeply impact communities of color, aren’t just medical terms, but lived experienc
Caregivers See the Gaps That Research Misses with Stephanie Monroe
“Don’t come into someone’s home for a party without bringing a gift.” – Stephanie MonroeIn this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Stephanie Monroe, advocate and community leader, for an empowering conversation about what true inclusion in clinical research really looks like.Stephanie shares her perspective on patient-centered care, and why small but vital su
Two Paths, One Purpose: Lupus Journeys and the Power of Research
“It might take me out, but it's gonna have to chase me down to do it.” – Shanell MatlockIn this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Emmitt Henderson III — founder of Male Lupus Warriors — and Shanell Matlock, his partner and fellow advocate. Together, they open up about the raw realities of living with chronic illness, navigating kidney failure, and learn
Speaking the Language of Trust: Why Translation Matters in Research
"Translations aren't just helpful — they're essential."In this episode, Dr. Renarda Jones sits down with Ricky Ricardo Villa, owner of Casa Sur Hacienda and a dedicated community leader who has been helping Diverse Research Now bring clinical trial education to Spanish-speaking communities.They talk about the importance of accurate translation and interpretation at research eve
Prescreening Has Power and It’s a Good Step Toward Equity!
Prescreening gives us a chance to educate before decisions are made.In this solo episode, I talk about why prescreening is one of the most important and overlooked steps in the clinical trial process. At Diverse Research Now, we use Advocate Assisted Prescreening to bridge the gap between clinical trials and the communities that are too often left out.Through health fairs, community events, and re
Healing the Delta: A Call for Research with Dr. Jazmine Crain
“Let’s stop just talking about inclusion. Let’s go do the work.”Host Dr. Ren Jones talks with Dr. Jazmine Crain, founder of Covalent Clinical Research, about building real trust and access in clinical research—starting in Mississippi. Dr. Crain shares how she meets communities where they are, from churches to clinics, making research visible and relevant. Together, they call on sponsors and resear
Shifting Gears, Staying Focused: A Community Update from Dr. Ren
“Just because we’re slowing down doesn’t mean we’re stopping.”In this special solo episode, I share some exciting updates, a few changes, and what’s ahead for Voices of Inclusive Research.We’re shifting from a biweekly release to a monthly schedule so I can pace myself and still show up with the energy this work deserves. Don’t worry—we’re still here, and I’m still committed to amplifying the voic
Talking Pediatrics with Elisha Butts: Inclusive Research is a Family Affair - Part 2
What happens when a passion for research runs in the family?In this heartfelt episode of Voices of Inclusive Research, host Dr. Renarda Jones is joined by her sister, Elisha Butts—a clinical research professional with over 13 years of experience. Together, they reflect on their parallel journeys from Alzheimer’s research assistants to community-engaged advocates for inclusive science.Elisha shares
The Front Lines of Inclusion: Voices from the Health Equity Congress Conference
What does it take to move health equity from conversation to action?In this special episode, Dr. Renarda Jones brings us inside the Health Equity Congress—where powerful voices from across disciplines gathered to reimagine inclusion in research and care.From bedside insights to boardroom strategies, you’ll hear from public health professionals, researchers, and community leaders who are challengin
Beyond the Diagnosis: A Caregiver's Voice in Facing the Wind
"I didn’t choose caregiving—it chose me."In this deeply moving episode of Voices of Inclusive Research, host Dr. Renarda Jones sits down with Carla Preyer, founder of From the Salon Chair to Self-Care and advocate for dementia caregivers. Carla shares the powerful story of caring for her husband, Patrick, through his eight-year battle with Lewy body dementia—a journey filled with misdiag
Faith, Fear, and Inclusion: Dr. Dung Trinh on Healing Beyond Borders
“Research is not just data. It’s people, their stories, and their trust.”In this compelling episode of Voices of Inclusive Research, Dr. Ren sits down with Dr. Dung Trinh — a Vietnam War refugee turned physician, researcher, and global health advocate. His journey from a refugee camp to the forefront of Alzheimer's research and inclusive healthcare isn’t just inspirational — it’s transformati
Building Trust Together: Inclusive Research Is a Family Affair with Michael Jones
What does true representation in clinical research look like? And why does it matter?In this episode of Voices of Inclusive Research, host Dr. Ren sits down with a special guest, her husband Michael Jones to discuss the pressing need for diversity in clinical trials. They dive deep into the systemic barriers that prevent communities of color from participating in research and explore the real-worl
Thyroid Eye Disease: Breakthroughs, Barriers, and the Need for Diversity with Dr. Vivek Patel
Did you know that thyroid eye disease (TED) can cause vision loss, double vision, and even blindness?In this episode of Voices of Inclusive Research, host Renarda Jones sits down with Dr. Vivek Patel, Chief of Neuro-Ophthalmology at UC Irvine, to explore new breakthroughs in thyroid eye disease treatment and the critical need for diverse participation in clinical trials.Dr. Patel explains the warn
Community, Research, and Action: What’s Next for Inclusive Healthcare
What does inclusive research really look like in action?In this special solo episode of Voices of Inclusive Research, I share exciting community updates, upcoming events, and ways you can get involved in advancing inclusive healthcare research.From monthly Chow & Chat discussions on health topics like brain health and autoimmune diseases to major events like the Community Clinical Trial Health
Bridging Science and Business: How Dr. Denise Bronner is Driving Impact in Research
What happens when personal experiences collide with a passion for science and business?Dr. Denise Bronner, CEO and founder of Impactful Ventures, shares her journey from academia to consulting, pharma, and venture capital—all with the goal of driving meaningful change in healthcare.In this episode of Voices of Inclusive Research, host Dr. Ren and Dr. Bronner discuss the urgent need for diversity i
From Academia to Impact: Why Mental Health Research Must Include Every Voice with Dr. Krystal Lira
Can research truly serve as a resource for the community?In this episode of Voices of Inclusive Research, host Dr. Renarda Jones sits down with Dr. Krystal Lira, a Senior Research Associate at UCSD, to discuss the power of community-driven mental health research. Dr. Lira shares her journey from academia to real-world research, highlighting the importance of lived experience in shaping effective h
Migraine Research, Mentorship, and Diversity: Dr. Aliya Frederick’s Story
How do we ensure that underrepresented communities benefit from clinical research?In this episode of Voices of Inclusive Research, Dr. Ren sits down with Dr. Aliya Frederick, a child neurologist and researcher specializing in pediatric migraines. Dr. Frederick shares her inspiring journey, from her early fascination with neuroscience to leading groundbreaking clinical trials at UCSD.Discover how D
How Purpose Drives Holistic Health and Equity
“True health starts with purpose—and purpose thrives in community.”In this episode of Voices of Inclusive Research, Renarda Jones talks with Justin Campbell, a UX designer turned health and mindset coach, about the intersection of personal growth, wellness, and inclusive health data. Justin shares how his shift from tech to health coaching was driven by a desire to help others achieve holistic wel
Christmas Gratitude: Celebrating Voices That Inspire Change
"Inclusive research isn’t just a goal—it’s a responsibility we all share."In this special holiday episode of Voices of Inclusive Research, host Dr. Renarda Jones takes a moment to celebrate the incredible journey of the podcast and reflect on the powerful lessons shared by past guests. From breaking misconceptions to fostering trust and advocating for representation, this episode revisit
Listening to the Body: A Journey of Diagnosis, Research, and Recovery with Tracy Phillips
Real change starts when every voice is heard.In this episode of Voices of Inclusive Research, Renarda Jones welcomes Tracy Phillips, a dedicated advocate for inclusion in clinical trials. Tracy shares her deep insights into the critical role genuine representation plays in transforming clinical research and ensuring no community is left behind. She emphasizes the importance of intentional outreach
Thinking Outside the Box: Dan Sfera on Overcoming Challenges in Clinical Trials
Sometimes the best innovations come from just figuring it out as you go.In this Voices of Inclusive Research episode, Renarda sits down with Dan Sfera, the trailblazing "Clinical Trials Guru" and a seasoned research site owner. Dan opens up about his unplanned journey into clinical research, sharing the highs and lows that shaped his two-decade-long career. From his early days struggling
The Power of Participation in Research with Fannie Johnson
Welcome to the Voices of Inclusive Research Podcast.A space where we amplify the voices of underrepresented communities in clinical research, sharing stories and insights to foster diversity and inclusivity in healthcare. In this episode, Renarda welcomes Fannie Johnson, a long-time participant in clinical research, to share her journey and insights. She discusses her 20-year involvement in the Me
Snowballing Change: How Positive Experiences Drive Community Engagement in Research
"Without diversity in clinical trials, we're missing pieces of the puzzle that could save lives." This message is central to this episode of Voices of Inclusive Research, where host Renarda Jones chats with Jen Lothridge, a clinical trial participant and advocate, about how inclusive research can transform healthcare for underrepresented communities.Jen shares her journey in medical
Fixing Cracks in Healthcare with Mary Futrell
Clinical research holds the power to change the future of healthcare for communities of color—but it can't happen without your voice. In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Mary Futrell, a community leader and seasoned research participant, to discuss the significance of involving underserved populations in clinical studies. Mary shares her experienc
Breaking Misconceptions and Building Knowledge: A Conversation on Health and Research with community member, Joseph Frazier
Research is the bridge that connects our past health disparities with a future of equitable solutions, but only if we choose to cross it together.In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with community member Joseph Frazier to discuss the critical role of clinical research in addressing health disparities in communities of color. Joseph shares his personal exper
Bridging the Gap Between Research and Community Needs
Welcome to the Voices of Inclusive Research Podcast.A space dedicated to bridging the gap between researchers and the community, ensuring all voices are heard, and fostering a more inclusive research landscape.In our very first episode, Dr. Renarda Jones speaks directly to the community, emphasizing why research matters to everyone, not just scientists. She breaks down the barriers between researc
Voices of Inclusive Research: Your Voice Matters
Voices of Inclusive Research is a podcast dedicated to exploring the diverse and dynamic world of inclusive research. Each episode features thought leaders, community members and advocates who we welcome to share their questions, concerns, insights, lived experiences and groundbreaking work. Our mission is to give the community a voice in clinical research. We aim to inspire and inform by highli
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