Hydro Heroes Unite
Hydro Heroes Unite is a podcast for parents and caregivers of children with hydrocephalus. Hosted by Taisha Cameron, Season One shares stories from families navigating pediatric hydrocephalus and insights from medical professionals. New episodes arrive every other Wednesday. The show was created in partnership with the Hydrocephalus Association.
Episodes
Dare To Be Your Unique Self - Angelica's Hydro Story
Send us Fan MailIn this episode, I had the wonderful opportunity to sit down with my daughter, Angelica, and talk about her life with hydrocephalus. I tried to keep the conversation focused on her experiences with surgery after a shunt malfunction and all things hydrocephalus — but she had other plans. Angelica spoke about what matters most to her: standing up for yourself, being your unique self,
Brotherhood & Bravery: Josh and Jake's Hydrocephalus Story
Send us Fan MailToday I share parts of my conversation with twin brothers, Josh and Jake. Josh has hydrocephalus and Jake doesn't. We talk about what can be challenging, what brings them joy and being brave. I also got the opportunity to speak with their mom, Emily, about things she's learned caring for a loved one with hydrocephalus. Resources connected to today's episode:Hydroceph
Navigating IEP and 504 Plans with Education Law Attorney Ashley VanCleef
Send us Fan MailNot sure what an IEP or 504 plan is or if your child needs one? Today on Hydro Heroes Unite education law attorney Ashley VanCleef joins me to break down IEP's and 504 plans for adolescents living with hydrocephalus. We talk about what the plans are, how to start the process, and what to be mindful of along the way. Ashley also shares the legal steps to take when things aren’t
Mental Health and Hydrocephalus with Pediatric Psychologist Dr. Elizabeth McRae
Send us Fan MailPediatric psychologist Dr. Elizabeth McRae returns to the show after her Season 1 conversation on caregiver resilience and advocacy. Today I'll be sharing parts of our conversation about mental health in adolescents living with hydrocephalus. We explore how anxiety, depression, school stress, and chronic symptoms shape daily life for teens, and how families can support emotion
School Life, Growing Confidence, and Becoming More Independent: Camille's Hydro Journey
Send us Fan MailToday I’ll be sharing parts of my conversation with Camille, a 15-year-old high schooler who loves musical theater, singing and writing and was diagnosed with hydrocephalus when she was ten years old. Camille is our first brave adolescent voice this season speaking out in her own words about her experience living with hydrocephalus. HA Resources:Request a Hydro Hero shoutout on the
School, Advocacy, and Supporting Independence: Raising a Teen with Hydrocephalus
Send us Fan MailI sit down to talk with LaShonda, a mom of teen daughter Camille who was diagnosed with hydrocephalus at ten years old. We discuss their family's experience receiving the diagnosis, school experiences, advocacy and the challenges of supporting independence in a teenager living with a complex medical condition like hydrocephalus. National Conference on Hydrocephalus, HA CONNECT
Understanding the Adolescent Brain & Hydrocephalus with neuropsychologist Dr. Andy Zabel
Send us Fan MailSeason 2 is all about the adolescent stage of hydrocephalus. To kick things off, Dr. Andy Zabel shares his insights as a neuropsychologist on brain development during this stage of life. We sat down to discuss executive functioning, when parents should consider a neuropsych evaluation, the impact of relationships and technology, and much more. For more resources connected to this c
Season 2 Trailer: The Adolescent Stage of Hydrocephalus
Send us Fan MailJune 24th we kick off season 2 of Hydro Heroes Unite. This season is all about the adolescent stage of hydrocephalus. We'll discuss brain development, mental health, IEP & 504, and living an active life with medical experts and professionals who dedicate their careers to helping kids and families thrive. And the best part, we'll hear from kids and teens living with hy
Dancing in the Rain: Scott + Angelica’s Story of Hope + Healing
Send us Fan MailIn this final episode of Season One, I bring it home (literally) and share parts of my conversation with my husband Scott as he opens up about his perspective through Angelica’s hydrocephalus and Dandy-Walker diagnosis.Scott opens up about:The shock of receiving a diagnosis during pregnancyNavigating NICU life, Hurricane Maria and unexpected PICU transfersFinding humor in hard plac
Self-Care is Not a Luxury, it’s a Responsibility: Advocacy & Resilience with Pediatric Psychologist Dr. Elizabeth McRae
Send us Fan MailToday I’ll share parts of my conversation with Dr. Elizabeth McRae, a pediatric psychologist at the University of Alabama, to talk about empowering children with complex medical conditions and supporting the families who care for them.We explore:The difference between pediatric psychologists and neuropsychologistsHow parents can help kids learn to advocate for themselvesThe RAISE p
The Search for the Silver Lining: Melissa & Abagail’s Hydrocephalus Story
Send us Fan MailIn this heartfelt and often funny episode of Hydro Heroes Unite, I sit down with Melissa, a fellow NICU mom and twin mom, whose daughter Abagail lives with hydrocephalus, hemiplegia, cortical visual impairment, and epilepsy.Melissa shares her heart and her humor as she reflects on their family’s journey — from the early NICU days to navigating the complexities of hydrocephalus, inc
Helping Children with Hydrocephalus Thrive with Neuropsychologist Dr. Jennifer Queally
Send us Fan MailWhat every parent needs to know about helping kids with hydrocephalus thrive at home and school. Today’s conversation with neuropsychologist Dr. Jennifer Queally explores the impact of hydrocephalus on learning and development, how parents and schools can collaborate, and the challenges children face in self-advocacy. The conversation also dives into practical strategies for suppor
Understanding Hydrocephalus: A Conversation with Pediatric Neurosurgeon Dr. Ramin Eskandari
Send us Fan MailWhat is hydrocephalus? How is it most commonly treated? And what should families know about living with this complex neurological condition? In this episode we’ll hear from Dr. Ramin Eskandari, a leading neurosurgeon, about the realities of hydrocephalus care.We discuss:What hydrocephalus is and how it affects patientsThe most common treatment options, including shunts and ETVWarni
Faith, Family, and Fight: Crystal & Natalie's Story of Resilience
Send us Fan MailCrystal’s story is one of resilience, faith, and hope. After her daughter Natalie was diagnosed with hydrocephalus, additional challenges followed: cerebral palsy, epilepsy, and autism. In this episode, Crystal opens up about walking through the valley of the shadow of death, leaning on her faith, and finding strength as a parent in the most difficult circumstances. We discuss how
When the Whole Family’s Admitted: NICU Care & Hope with Dr. Hallie Morris
Send us Fan MailIn this episode of Hydro Heroes Unite, we head into the NICU with neonatologist Dr. Hallie Morris, who brings both her medical expertise and deep compassion to the conversation.We explore what it really means when a baby is admitted to the NICU - and how, in many ways, the whole family is admitted too. Dr. Morris shares how hydrocephalus is often diagnosed in newborns, how care tea
We Just One-Daying It: Miya + Mila’s Hydrocephalus Story
Send us Fan MailIn this first episode of Hydro Heroes Unite, I sit down with Miya — a mother of three whose youngest daughter Mila lives with hydrocephalus and cerebral palsy. Miya opens up about navigating a four-month NICU stay with newborn twins during the pandemic, while also parenting a toddler at home.We explore what survival mode really looks like, what comes after crisis, and how Miya stay
Introducing Hydro Heroes Unite
Send us Fan MailWelcome to Hydro Heroes Unite, a new bi-weekly podcast for parents and caregivers raising children with hydrocephalus. I'm your host, Taisha Cameron a fellow hydro hero mama, and in this season, we’re shining a light on the pediatric hydrocephalus journey.Each episode brings you real conversations with other parents and insights from medical professionals who understand the da
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